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2010 Webinar Series
We are hosting a series of seminars broadcast over the web, “webinars,” on topics of high interest to people with CFS, loved ones and health care professionals. Each of these programs will feature top experts and will be available to the public. The only charge to participate may be the cost of your phone call* to listen to the program.
We have expanded our series to two programs per month. Take a look at the schedule of planned topics and dates. We'll update this page as registration pages for each program is added. We will make every effort to archive past programs on our website for later viewing.
UPCOMING PROGRAMS
CFS & The Viral Connection
Date: Thursday, September 16, 2010
Time: 12:30 PM - 1:30 PM EDT
Registration page:
https://www1.gotomeeting.com/register/302219616
Because some cases of chronic fatigue syndrome (CFS) begin with a flu-like infection, several viruses and other infectious agents have been studied as possible causes of CFS. Although none of them have yet been proven to cause CFS, several have been associated with CFS, and the development of CFS following infection with several infectious agents has been well documented.
The October 2009 publication of the paper in Science linking the gammaretrovirus XMRV to CFS is the subject of intense scientific inquiry and heated debate. Yet, most doctors and researchers who think that infectious agents can trigger CFS believe it is unlikely that a single infectious agent will explain all cases.
Join CFS researcher and clinician Dr. Anthony Komaroff of Harvard Medical School and Brigham and Women's Hospital for an exploration of some of the infectious agents and illnesses connected to CFS, including Epstein-Barr Virus (EBV), Human Herpesvirus (HHV)-6, Q-fever, Ross River virus, Lyme Disease, Parvovirus, Borna disease virus, Influenza A (H1N1) virus (swine flu), retroviruses, enteroviruses and mycoplasmas.
Comorbid Conditions: The Alphabet Soup Of CFS
Date: Thursday, October 21, 2010
Time: 12:00 PM - 1:30 PM EDT
Registration page:
https://www1.gotomeeting.com/register/892276977
CFS. FM. GWS. IBS. IC. MCS. TMJ.
Throw in endometriosis, Lyme disease, Shojren’s syndrome and vulvodynia, and you’ve got a veritable alphabet soup of conditions that often accompany chronic fatigue syndrome (CFS).
(Those other initials? FM = fibromyalgia. GWS = Gulf War syndrome. IBS = irritable bowel syndrome. IC = interstitial cystitis. MCS = multiple chemical sensitivity. TMJ = temporomandibular joint and muscle disorders.)
Join internist Dr. Morris Papernik of ProHealth Physicians Group and Hartford Hospital in Hartford, Conn., for a discussion of CFS’s comorbid conditions, or those illnesses or disorders that are present in addition to a primary disease or disorder. Unfortunately, people with CFS often suffer from more than CFS alone. Dr. Papernik will share information about the most common comorbid conditions found in CFS patients, together with tips for dealing with multiple disorders.
Dr. Papernik is board certified in internal medicine. He works to educate health practitioners, as well as the lay public, about chronic fatigue syndrome (CFS) and fibromyalgia. He is a member of the faculty of the University of Connecticut Medical School. Dr. Papernik is one of only four doctors in the country currently serving on the federal Chronic Fatigue Syndrome Advisory Committee of the Department of Health and Human Services.
“DOC TALK:” Communicating With Your Health Care Team About CFS
Date: Thursday, November 11, 2010
Time: 12:00 PM - 2:00 PM EDT
Registration page:
https://www1.gotomeeting.com/register/303014216
Have you lost track of the number of times you’ve left your physician’s office feeling angry, frustrated, disrespected and rejected? Have you hopped from provider to provider, looking for someone who would take you and your illness seriously? Have you spent precious time and energy lamenting the state of managed care with its mandated seven-minute appointment limits?
You’re not alone. The complexity of chronic fatigue syndrome (CFS) breeds frustration among both patients and physicians. Patients want health care providers who, at the least, are sympathetic to their illness, and at best, understand it. They want symptom relief and their lives back. Physicians generally want to carry out their oaths to do no harm, unravel the mystery of CFS and provide that relief -- or even a cure.
What can people with CFS (PWCs) do to strengthen their relationships with their doctors and other health care providers? Effective communication is the key. Join Dr. Lucinda Bateman, founder of The Fatigue Consultation Clinic in Salt Lake City, Utah, to learn some strategies to enhance communication with your medical team and avoid leaving the doctor’s office feeling frustrated and depressed.
Dr. Bateman completed her BS and MS at Brigham Young University, attended the John Hopkins School of Medicine and returned to the University of Utah for her internal medicine residency. She was certified by the American Board of Internal Medicine in 1991. Throughout her career, her interest has focused on the diagnosis and management of unexplained chronic fatigue, CFS/ME and FM, inspired in part by the silent suffering of her sister, who had CFS for 16 years before her death in 2001. In 2000, Dr. Bateman opened her fatigue consultation clinic and has since evaluated more than 1,000 patients with chronic fatigue. She is a “fan favorite” among PWCs across the country.
Minimizing Relapses: Pacing Yourself Through the Holidays
Date: Thursday, November 18, 2010
Time: 1:00 PM - 2:30 PM EDT
Registration page:
https://www1.gotomeeting.com/register/226498113
Do you have a love-hate relationship with the holidays? You love them for their joy and excitement, yummy food and time with family and friends; but you dread the extra time and effort that may be expected of you at this time of year, and the prospect of a crash in January makes you wonder if it’s even worth it.
Hear from two experts in the areas of pacing and exercise physiology to discover how NOT to wipe yourself out during this, or any other, holiday season; and to learn more about the science behind post-exertional relapse.
Periods of intense symptoms (often called relapses, setbacks or flares) are a common and often demoralizing part of CFS. Besides creating additional pain and discomfort, they undermine efforts to gain control. Pacing offers an alternative. Matching activity to energy can reduce suffering, bring stability to life and minimize relapses. Dr. Bruce Campbell, executive director and founder of the CFIDS & Fibromyalgia Self-Help program, will give an overview of pacing, focusing on understanding limits and learning pacing strategies. He will also describe practical ways to use pacing to enjoy the holidays and other special events.
Dr. Dane B. Cook, assistant professor at the University of Wisconsin-Madison School of Kinesiology, will discuss the research on acute exercise in CFS from an exercise physiology perspective and from a patient perspective. He'll review the research on physiological responses during exercise followed by physiological and symptom responses post-exercise (i.e., post-exertional malaise). Dr. Cook will also outline the differences between acute and chronic exercise responses in the studies that have examined exercise training in CFS.
ACCESS PAST PROGRAMS
Last updated on August 16, 2010
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