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CHRONIC FATIGUE SYNDROME |
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National and International Print Media Coverage
2010 Coverage 2009 Coverage
2008 Coverage
2007 Coverage: 5/07 through 12/07
Time magazine provides important recognition to CFS in its “The Year in Medicine From A to Z” list for 2007. The brief entry notes that “Researchers in New South Wales, Australia, have identified three dozen genes that may be linked to the syndrome, while doctors in California have found possibly inflammatory viruses among patients with CFS.” (November 21, 2007)
http://www.time.com/time/magazine/article/0,9171,1686833-2,00.html
The September 2007 issue of Arthritis Practitioner includes a feature article titled, “What You Should Know About Chronic Fatigue Syndrome.” In addition to providing basic CFS facts to NPs, PAs and rheumatologists who diagnose and treat arthritis and other musculoskeletal conditions, the article focuses on CFS research and notes that the National Institutes of Health is interested in funding studies “to clarify how the brain fits into the schema for understanding CFS as the mediator of the various body systems involved.” It also refers to CDC research and the CFS Toolkit for Health Care Professionals, as well as provides advice for diagnosing and working with CFS patients. (September 2007) In “Stomach Virus a Culprit in Chronic Fatigue Syndrome,” The Washington Post reports on a study by California infectious disease clinician and researcher Dr. John Chia that links CFS with enteroviruses, which cause acute respiratory and gastrointestinal infections. Researchers took stomach biopsies and performed endoscopies on 165 CFS patients, all of whom had had longstanding gastrointestinal complaints. Eighty-two percent of the specimens from CFS patients tested positive for enteroviral particles, compared with just 20 percent of the samples from healthy people. The findings were published in the Sept. 13 online issue of the Journal of Clinical Pathology. (Washington, DC) (9/13/07)
“The Health Service has issued the first guidance on how to treat ME sufferers after being urged to bring the condition ‘out of the wilderness.’ It aims to redress years of prejudice against those with chronic fatigue syndrome - the term by which ME is now often known - who were told the condition was ‘all in the mind.’ The NHS guidelines instruct doctors not to tell patients to ‘go to the gym’ as this could make them worse.” These sentences open “Doubting doctors are ordered to take ME patients seriously,” an article in London’s The Daily Mail that reports that Great Britain’s National Institute for Health and Clinical Excellence (NICE) and the National Collaborating Centre for Primary Care have published a clinical guideline on how to effectively diagnose and manage CFS/ME in adults and children. (Great Britain) (8/22/07)
Trade journal PR Week spotlights the public awareness campaign in article on the importance of research in developing and executing a health care campaign. It describes how the results from focus groups of health care professionals and PWCs shaped elements of the campaign. (7/30/07) In “Body Clock Shift May Cause Sickness-Linked Fatigue,” Forbes details the study of researchers at University Hospital Zurich in Switzerland of cytokine TNF-alpha. They found that “a jump in TNF-alpha activity ‘is found in most of the acute and chronic infectious diseases and is also part of the inflammatory response in autoimmune diseases…’” (7/19/07)
The Economist publishes an article that asserts that CFS “may be a by-product of an anti-infection mechanism.” It briefly outlines the role of a specific cytokine, tumor necrosis factor alpha (TNF-a), in causing fatigue in response to an infection and points to it as a possible cause of CFS. (“Killing time”) (7/19/07) Writer David Tuller notes that “Chronic Fatigue No Longer Seen as ‘Yuppie Flu’” in an article in The New York Times. He includes mentions of the public awareness campaign and the recent release of new prevalence data and comments from the CDC’s Dr. William Reeves and other researchers, Association president Kim McCleary and several PWCs. The thorough Science section article briefly describes the history of the illness and sums up the research. (7/17/07)
Australian researchers have identified a “Gene cluster linked to chronic fatigue syndrome” which may help finally explain the mysterious condition, according to an article in The Melbourne Herald Sun. They looked at more than six million pieces of DNA information in people who had glandular fever (known in the U.S. as infectious mononucleosis), including half who went on to develop chronic fatigue and found 35 genes linked to the illness’ symptoms. (Australia) (7/05/07)
http://www.news.com.au/heraldsun/story/0,21985,22020918-5005961,00.html
Remedy magazine’s July issue includes a brief mention of the public awareness campaign in its “Health News” section. (7/01/07)
The Sussex Express offers a short profile of 16-year-old CFS/me patient Louisa Willer, who was recently presented with the Brian Smith Youth Award by the Newhaven, Peacehaven and Seaford Lions Club for her efforts in battling the disease. (“Brave Louisa takes Lions’ award”) (Great Britain) (6/27/07)http://www.sussexexpress.co.uk/news?articleid=2984390 CFS patient Tracey Lilly is often bedridden and spends her time searching the Internet and newspapers for various contests to enter. In 2005, she entered one that offered £15,000 to make a dream come true. Her dream was to build a garden for cancer patients at a nearby hospital. She had to rest for a week just to make the short trip across the road from her house to the facility for the garden’s grand opening on June 5. (“ME sufferer’s £15,000 hospital gift”) (EDP24.com) (Great Britain)
http://new.edp24.co.uk/content/news/story.aspx?brand=EDPOnline&category=News&tBrand=EDPOnline&tCategory=news&itemid=NOED05 Jun 2007 21:11:53:657
Julie Hackwell sends a letter of thanks to the editor of The Gazette for its recent story about CFS. Her 13-year-old daughter has the illness. (“CFS is a serious illness”) (Canada) (6/02/07)
http://www.canada.com/montrealgazette/news/letters/story.html?id=700f0bea-9991-4b5a-bff6-4d94843854ad The June issue of Arthritis Today includes an article entitled “Sick and Tired” that outlines the difficulties in diagnosing CFS and discusses the CDC’s recent research advances into the genetic aspects of the disease. (6/01/07)
Cooler magazine describes women’s world surfing champion Layne Beachley’s appearance at a two-day event in Australia, including a synopsis of Beachley’s career, which was nearly cut short by CFS. (6/05/07)http://www.coolermag.com/news/category/world/layne-beachleys-womens-surf-spree/co_191209.html The Weekly Times notes that 22-year-old CFS patient Helen James was featured on the ABC network’s youth program, JTV, discussing her illness. (“Helen goes to air on her invisible illness”) (Australia) (5/28/07)
http://www.weeklytimes.com.au/2007/05_may/30_05_07/story_10.html The Vancouver Sun reprints a profile of CFS patient Lauri Lidstone from The Montreal Gazette in which both she and her mother discuss the difficulties of having an illness that does not cause its patients to “look sick.” (“‘Like running on empty,’ victim of chronic fatigue says”) (Canada) (5/28/07)
http://www.canada.com/vancouversun/story.html?id=fb1f0196-b7fe-4db0-986f-8eb1fa31db0f&k=23336 The Montreal Gazette publishes a short overview of CFS and quotes Association lobbyist Tom Sheridan, president of The Sheridan Group, as noting that the illness is “the death of the life that you knew.” (“‘It is the death of the life that you knew") (Canada) (5/28/07)
http://www.canada.com/montrealgazette/news/story.html?id=a79c9ca4-e27a-4790-9ec3-e09b6a681c18 The Swindon Advertiser writer Ben Perrin describes the youth winners of the Young Community Champions award for volunteer service, one of whom is 11-year-old Peter Newton, a CFS patient who is a gymnast and coaches younger disabled students despite his illness. (Great Britian) (5/20/07)
http://www.swindonadvertiser.co.uk/news/swindonnewsheadlines/display.var.1412157.0.gym_fixed_it_for_us.php “What It’s Like to Suffer from Chronic Fatigue Syndrome,” posted on Associated Content, quotes heavily from an article published in The Mankato Free Press about CFS patient Kim Covert. (Minnesota) (5/15/07)
http://www.associatedcontent.com/article/243082/what_its_like_to_suffer_from_chronic.html In acknowledgement of International CFS Awareness Day, readers of The Daily Post learn that “Kathy won’t give in, no matter what.” Writer Allison Brown profiles CFS patient Kathy Folley, who “helped set up a local support group for others affected by chronic fatigue and even ran for the Rotorua District Council at the last election.” (New Zealand) (5/13/07)
http://www.dailypost.co.nz/localnews/storydisplay.cfm?storyid=3733655&thesection=localnews&thesubsection=&thesecondsubsection In “Amy so tired of coping with ME,” writer Rebecca Lefort chronicles how 15-year-old CFS patient Amy Paddick has last friends and her dream of becoming a lawyer in the year since being diagnosed with the illness. (The Evening Star) (Great Britian) (5/10/07)
http://www.eveningstar.co.uk/content/eveningstar/features/story.aspx?brand=ESTOnline&category=Features&tBrand=ESTOnline&tCategory=Features&itemid=IPED10 May 2007 11:33:58:650 Writer Greg Tindle introduces readers to 22-year-old Michelle Penny and tells her story of living with CFS since being diagnosed at age 10. (“‘This illness has stolen my life’”) (The South Wales Echo) (Wales) (5/10/07)
http://icwales.icnetwork.co.uk/0100news/health/tm_headline=--8216-this-illness-has-stolen-my-life--8217-&method=full&objectid=19074752&siteid=50082-name_page.html “Accept ME as I am, says sufferer,” Ruth Roberts, an 11-year CFS patient in an article in The Western Telegraph. She describes her life with CFS/ME and the story includes a link to an online petition to urge Prime Minister Tony Blair to enforce the acceptance of the WHO classification of the illness among British medical professionals. (Wales) (5/10/07)
http://www.westerntelegraph.co.uk/mostpopular.var.1387974.mostviewed.accept_me_as_i_am_says_sufferer.php In “Silent illness that public are still unaware of,” writer Nuala McAloon profiles CFS patient Stanley Parkinson, a 61-year-old man who became ill in 1999. “He suffered for two years with what he describes as ‘devastating effects’ before he was finally able to put a tag on an illness that limited his life for the best part of eight years,” says McAloon. (The Fermanagh Herald) (Northern Ireland) (5/09/07)
http://www.nwipp-newspapers.com/fh/free/304345242676673.php The Evening Post of Bristol, United Kingdom, introduces Sir Peter Spencer, retired Royal Naval officer, as the new executive director of Action ME, the national charity for people suffering from CFS/ME. Spencer says he was inspired to take the post after watching a neighbor and father of four rendered unable to work by the illness. (“Former Royal Navy chief takes on top role at charity” (Great Britian) (5/7/07)
http://www.thisisbristol.co.uk/displayNode.jsp?nodeId=144913&command=displayContent&sourceNode=144913&contentPK=17243165 Natural Life magazine writer Wendy Priesnitz interviews organic grower, writer and coordinator of Nova Scotia Organic Growers Association (NSOGA) Janet Wallace, who has CFS, in its May/June issue. (“The Natural Life Interview: Janet Wallace: organic advocate”) (May)
http://www.life.ca/nl/115/wallace.html Writer Noor Javed describes the in-patient pain rehab program at Bloorview Kids Rehab in Toronto in “Children with chronic pain find relief at Toronto rehab centre for kids” on Canada.com. Dr. Brian Feldman, a rheumatologist at the Hospital for Sick Children, aims “to bring clarity, and treatment, to the little-understood conditions” of CFS and FM. The in-patient clinic opened in 1993, and is one of the only programs in Canada that offers an intensive four-to six-week treatment plan that includes social work, occupational and physiotherapy and school. (Canada.com) (5/06/07)
The Toronto Star says that “Awareness grows about chronic fatigue” in an article profiling college student Kayla Scott who was stricken with CFS two years ago. Writer Helen Henderson focuses on the prevalence, difficulty in diagnosing and need for greater awareness of CFS and offers links to resources for patients and the public. (Canada) (5/05/07)
http://www.thestar.com/Life/article/209871 Writer David Jeffels introduces readers of The Gazette & Herald to Bryony Wild, a 24-year-old CFS patient who is slowly recovering from the illness which struck her four years ago. She credits her parents for their support and care during this time and shares her story to kick off “ME Awareness Week” in Great Britain next week. (“ME sufferer’s tribute to ‘amazing’ mum and dad”) (Great Britain) (5/03/07)
http://www.thisisryedale.co.uk/display.var.1373229.0.me_sufferers_tribute_to_amazing_mum_and_dad.php In “Workplace Disabilities Are on the Rise,” Wall Street Journal writer M.P. McQueen includes a brief mention of Karen Campbell, a paralegal and CFS patient in Sacramento, California, who started a home-based business after being unable to find work because of her condition. (5/01/07)
http://online.wsj.com/article/SB117797513669187463.html?mod=googlenews_wsj SLEEP, the official journal of the Associated Professional Sleep Societies, LLC (a joint venture of the American Academy of Sleep Medicine AASM and the Sleep Research Society), publishes a study in its May 1 issue that “finds that CFS is also associated with a blunted slow wave activity (SWA) response to sleep challenge, suggesting an impairment of the basic sleep drive and homeostatic response.” (5/01/07)
http://www.eurekalert.org/pub_releases/2007-05/aaos-jsc042507.php
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