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CHRONIC FATIGUE SYNDROME |
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Local Print Media Coverage
2010 Coverage 2009 Coverage 2008 Coverage
2007 Coverage: 1/07 to 4/07
The Deseret News’ “Day Planner” column includes a note about the May 4 – 5 chronic fatigue syndrome and fibromyalgia conference at Salt Lake Community College. (Utah) (4/30/07)
http://deseretnews.com/dn/view/0,1249,660215789,00.html Seattle resident and CFS patient Amanda Rinkel writes an impassioned letter to the editor of The Seattle Post-Intelligencer asking for help in raising awareness of the disease. Rinkel, “who fell ill at 17 years old and at 21 was declared disabled due to CFS,” says she wants the public to know that May 12, International Chronic Fatigue Syndrome Awareness Day “so that others in the future don't have to try to find the words to explain this confusing syndrome. I want to raise awareness so we can find a cause, a treatment and a cure for the million people suffering in the USA now.” (Washington) (4/28/07)
http://seattlepi.nwsource.com/opinion/313456_webltrs29.html In “For the love of the Red, White and Blue, ... the Purple and White, Too,” The Standard-Examiner writer Jamie Lampros profiles CFS patient and local school volunteer Barbara Skeen, who has been awarded the Governor’s Silver Bowl Award for Weber County at a ceremony in Provo. The award is presented to one outstanding volunteer in each county by Utah’s Volunteer Centers. (Utah) (4/23/07)
http://www.standard.net/live/news/102636 In The Oregonian, Evelyn Sharenov reviews Floyd Skloot’s fourth novel, Patient 002, which she deems “a page-turner that is at once love story, caper and medical thriller that takes novelistic aim and fires on pharmaceutical companies.” Skloot was diagnosed with CFS in 1998 and shares that diagnosis with his main character, Sam Kiehl. (“What’s the cure?”) (Oregon) (4/22/07)
http://www.oregonlive.com/entertainment/oregonian/index.ssf?/base/entertainment/1177003548111180.xml&coll=7
In “SNL offers program for ill students,” writer Lauren Cooney describes DePaul University’s School for New Learning (SNL) program that offers new options for chronically ill students to complete their undergraduate degrees with the Chronic Illness Initiative (CII), the first and only program in the nation designed to accommodate the needs of chronically ill students. Students to design their own programs in order to move at their own pace. Launched in 2003, the CII now serves 150 students with illnesses including CFS, lupus and rheumatoid arthritis, as well as those suffering from illnesses that require frequent hospitalizations, such as cancer or heart disease. (The DePaulian) (Illinois) (4/16/07)
http://www.thedepaulia.com/story.asp?artid=2275§id=2 The Maryland Independent publishes a thorough summary of CFS in its April 11 issue. The “Q&A”-style article answers the questions who gets it, how is it diagnosed, how is it treated and more. (Maryland) (4/11/07)
The Daily Herald writer Scott Johnson profiles former University of Washington basketball star and current International Basketball Association player Donald Watts Jr. During his college career, he led the Huskies to the Sweet 16 appearance and finished as Washington’s 18th-leading all-time scorer. After struggling for years with a variety of health issues, Watts was diagnosed with CFS in 2000. He uses acupuncture and homeopathic medicine to get the condition under control. While he no longer dreams of playing in the NBA, basketball remains an important part of his life. ("Passion to help others") (Washington) (4/07/07)
http://www.heraldnet.com/stories/07/04/07/100spo_e01watts001.cfm The Youngstown Vindicator reports that Sharon Regional Health System has settled a lawsuit with Carol Scholl, a former employee who alleged she was discriminated against because of her age and disability. Scholl was hired in 1973 but left in 1990 because of chronic fatigue syndrome and fibromyalgia, which limited her activity, she said. She was rehired in 2001, when she was without symptoms, and promoted three years later. When she told Sharon Regional her symptoms had returned and asked for help, her employer increased her workload, she alleged. A hospital spokesman would not discuss settlement details due to a confidentiality agreement. ("Hospital settles lawsuit") (Ohio) (4/07/07)
http://www.vindy.com/content/local_regional/289205228021215.php
In “Some Doctors, Friends, Relatives Dismiss Sickness,” The Ledger writer Gary White continues the story about difficult-to-diagnose diseases with a look at the skepticism faced by those suffering from CFS, FM, lupus and other conditions. (Florida) (4/02/07)
http://www.theledger.com/apps/pbcs.dll/article?AID=/20070402/NEWS/704020367/1039 The April 1 edition of Miami Living magazine profiles CFS researcher and clinician Dr. Nancy Klimas. The brief article describes her roles as a CFS advocate at the CDC and as the keynote speaker at the IACFS conference held earlier this year, and notes her optimism about and dedication to finding a cure for the illness. (Florida) (4/01/07)
In “‘Gray Area’ Diseases Prove Difficult to Treat, Understand: Fibromyalgia, chronic fatigue syndrome debilitate victims amid controversy, dispute in the medical community over unclear causes,” writer Gary White offers a detailed look at “… maladies [fibromyalgia, chronic fatigue syndrome and lupus] that generate controversy and dispute in the medical community.” He interviews both patients and health care professionals about their experiences with the diseases. The Lakeland Ledger story includes a sidebar with summaries of the definitions, diagnosis, prevalence, prognosis and treatment of each. (Florida) (4/01/07)
http://www.theledger.com/apps/pbcs.dll/article?AID=/20070401/NEWS/704010412/1039 The East Bay Business Times reprints an article from the Philadelphia Business Journal about Hemispherx BioPharma Inc. finalizing its new drug application for Ampligen, an experimental treatment for chronic fatigue syndrome that has spent more than 30 years in clinical studies. Dr. William Carter, Hemispherix’s chairman and CEO, said he expects the application will be completed in early April and is “cautiously optimistic” about securing an “accelerated review” from the FDA for the drug. (California) (3/30/07)
http://eastbay.bizjournals.com/eastbay/othercities/philadelphia/stories/2007/04/02/story8.html?b=1175486400^1439140 The Traverse City Record-Eagle publishes a short notice about the Chronic Fatigue Syndrome: Diagnosis and Management conference to be held on May 19. (Michigan) (3/28/07)
The Bridgewater Courier News announces that “Female volunteers sought for study of chronic fatigue syndrome.” The research team, led by Dr. Benjamin Natelson, a professor of neurosciences at New Jersey Medical School, seeks 80 female volunteers (both healthy and ill with CFS) in the New York/New Jersey area. Natelson theorizes that CFS may be caused by malfunctioning cytokines. The story provides more details for potential study participants and contact information. (New Jersey) (3/27/07)
In “Sick and tired: Chronic fatigue nothing to yawn about,” writer Naseem Sowti chronicles CFS patient Deborah Wilson’s diagnostic struggle and describes the disease’s affects on her body and life. It mentions the public awareness campaign and in a sidebar, lists some basic facts about CFS and provides web site addresses for the Association, the IACFS and the CDC. (The Ocala Star Banner) (Florida) (3/26/07)
http://www.ocala.com/apps/pbcs.dll/article?AID=/FP/20070326/HEALTHMATTERS/70326001/-1/health01
Patient Karsten Mouras finds solace and relief from CFS and other conditions in her garden. Sacramento Bee writer Pat Rubin shares her story in “A healthful hobby:Karsten Mouras finds therapy in gardening.” (California) (3/24/07) In the University of Toronto’s The Varsity Online, Greta Chiu writes about “A commonplace conundrum” and asserts that CFS is an environment-based condition. Chiu quotes a lecture by Dr. Lynn Marshall of the Environmental Health Clinic at the Women’s College Hospital. (Canada) (3/22/07) In CFS, CFIDS, ME; A Drive to Research and Educate by Christy Harrell, the author notes that “It is equally as hard to define this disease as it is to educate and warn both the medical field and society as to its devastating affects.” She discusses the debate about changing the name of the disease, offers facts about CFS and mentions the awareness campaign (including web addresses for both the Association and the CDC). (3/17/07) Link not available. CFS patient Donna Garfield pens a “10-year update” to an interview she first had with The Caledonian-Record reporter Ellen Cronin to discuss CFS. She describes seven good years of living with the illness followed by a near-three-year relapse from which she is just emerging. Garfield offers a 12-tip “survival list” for coping with the illness. (“Living with chronic fatigue syndrome”) (Vermont) (3/07/07) Link not available. The Buffalo News Life writer Andrew Z. Galarneau notes that March is National Chronic Fatigue Syndrome Month in his “Today may be the day to not know what day it is” column. (New York) (3/17/07) Alan Cocchetto, medical director of the National Chronic Fatigue and Immune Dysfunction Syndrome (CFIDS) Foundation, will be inducted into the Steuben County Hall of Fame for his work with the Foundation. (The Evening Tribune) (New York) (3/12/07) In “A debilitating condition, an uphill battle: Chronic fatigue is slowly gaining recognition,” The Star-Ledger’s Carol Ann Campbell presents an overview of CFS, the current research into its cause and the debate about whether or not it’s real. She interviews CFS patients Brian Bernard and Jackie Niederle, as well as Association board members and physicians and CDC officials. (New Jersey) (3/08/07)
The Hunterdon Democrat ran a short story announcing the “kNOw MORE” seminar held in New Brunswick, N.J. on March 10. (“Chronic fatigue seminar slated.”) (3/08/07) In “No magic cure for chronic fatigue syndrome,” writer Rob Carolus describes the illness and includes comments from Sarah Estes, J.C. Blair Sleep Lab sleep technician about the role of sleep in it. (The Tyrone Daily Herald) (Pennsylvania) (3/07/07) “Some scientists say: Chronic fatigue isn’t a disease,” says writer Josh Newton in The Tahlequah Daily Press. He chronicles the difficulties of obtaining an accurate diagnosis for a local CFS patient and discusses the redirection of CDC funds for CFS research. Newton also mentions the public awareness campaign and quotes from the Association’s web site. (Oklahoma) (3/07/07)
In its Health Issues Spotlight, The Star-Gazette recognizes March as “Chronic Fatigue Syndrome Awareness Month” and refers readers to the web site of Dr. Donnica Moore, a national media contributor about women’s healthcare issues. (New York) (3/07/07) The Reno Gazette-Journal says “A new chapter in research to treat cancer and immune system and brain disorders began Monday with a groundbreaking ceremony for a $78 million biomedical research center” at the University of Nevada. The building will house, among other things, the Whittemore Peterson Institute for Neuro-Immune Disease, the first of its kind in the nation dedicated to finding a cure for Chronic Fatigue Syndrome, autism, Gulf War illness and similar diseases. (“Ceremony launches medical research center effort”) (3/06/07) A press release posted by the University of Nevada (NevadaNews) also touts the Center for Molecular Medicine, the first new medical research facility to be built at the university in more than 20 years. (“School of Medicine breaks ground on Center for Molecular Medicine”) (3/05/07) The Princeton Packet alerts the public to events held in Central New Jersey for patients, caregivers and healthcare professionals, including the “kNOw MORE” seminar at Robert Wood Johnson University Memorial Hospital and “The Faces of CFS” photo exhibit at Menlo Park Mall. (New Jersey) (3/02/07) (content no longer available online) In a letter in The Monterey Herald to Dr. Peter Gott, a patient asks about a recent diagnosis of CFS. Dr. Gott urges her to explore the relationship between her constant fatigue and potential anemia with her regular physician. (“Anemia may be cause of chronic fatigue”) (California) (3/02/07) In a letter to the editor of The Mesa Arizona Tribune, CFS patient Kenneth Clemenger of Scottsdale thanks the paper for “taking CFS seriously” in its February 18 issue and provides the Association’s contact information. (Arizona) (2/27/07) The Temple University student newspaper, The Temple News, reports that “researchers in the School of Medicine are making progress in the understanding and treatment of two diseases caused by abnormalities in the human antiviral pathway: HIV and Chronic Fatigue Syndrome.” The story by reporter Vicky Thomas notes that a team headed by Dr. Robert J. Suhadolnik has found that CFS is not a clinical depression disease, but rather caused by a defect in the antiviral defense pathway. (“Doctors receive $1M grant for HIV prevention research: Through the use of gene therapy, researchers are striving to find ways to stop the spread of HIV”) (Pennsylvania) (2/27/07) An editorial in The Lake County News Herald offers a “brickbat” to the CDC for spending $4.5 million on a public awareness campaign for a disease that is “just not that important.” More than 85 CFS patients and advocates from across the country wrote letters of protest; read them here. (Ohio) (2/24/07) The Home News Tribune (New Jersey) lets area residents know about the traveling photo exhibit and CFS seminar in March. (2/21/07) Chicago CFS patient Carole Howard describes her frustration at having to explain the illness to doctors, family and friends in “Sufferers find chronic fatigue syndrome tiring to explain” in an article in The Chicago Defender. (Illinois)(2/21/07) Kathleen Conroy describes CFS in an article in Charlotte Weekly that promotes the traveling photo exhibit at SouthPark Mall. (“Chronic fatigue syndrome: Portraits in awareness”) (North Carolina) (2/9 – 15) “Emporian Hallie Kretsinger is National Merit Finalist” described the latest accomplishment of the high school senior from Emporia, Kansas, who created and donated the greeting card designs and watercolor paintings used as CFIDS Association of America fundraisers. (The Emporia Gazette) (Kansas) (2/08/07) Former teacher and CFS patient Ann Foster describes how her bout with mono turned into the disease in this article in a Fort Mill Times article that also mentions the national awareness campaign. (Exhausted? Can't get out of bed? It might be more serious than you think") (South Carolina) (2/07/07) In “Chronic Fatigue Syndrome easy to dismiss — until you have it” in The Lima News, patient Rick Weems describes life with CFS. (Ohio) (2/06/07) In “I couldn't write my name,” Jennifer Becknell profiled the journey of local CFS patient Tommy Smith to find a name and treatment for his “mysterious malady.” The article mentioned the traveling photo exhibit at Charlotte, N.C.’s SouthPark Mall. (The Rock Hill Herald) (South Carolina) (2/06/07) The Charlotte Observer included an item in its calendar about “The Faces of Chronic Fatigue Syndrome” traveling photo exhibit. The exhibit was at Charlotte’s SouthPark Mall from Feb. 8 – 11. (North Carolina) (2/06/07) In the “To Your Good Health” column, a patient writes to Dr. Paul G. Donohue, M.D., to ask about a diagnosis of CFS for an unexplained fatigue in the Life and Home section of the St. Paul Pioneer Press. (“Chronic fatigue syndrome disrupts life”) (Minnesota) (2/03/07).
The Huntsville Times profiled local author and CFS patient Gatha Crowson. ("Writer uses a take-charge attitude")(Alabama) (2/02/07) The Mail Tribune reviewed local author and CFS patient Alissa Lukara’s book, Riding Grace and told her story of healing. (Oregon) (2/02/07) A brief “Consumer Reports on Health” mention from Yonkers, N.Y., leads readers to the CDC’s CFS website. (2/01/07) The February issue of Miami Living Magazine highlights the research and clinical expertise of Dr. Nancy Klimas of the University of Miami. The magazine is not available on-line. (February 2007) Carol Scholl, a Sharon, Pennsylvania, CFS patient, is suing her employer, Sharon Regional Health System, for age and disability discrimination in her firing. A judge has ordered the case into mediation. (“Lawsuit: Sharon hospital fired woman because of her age, disability,” The Sharon Herald) (1/30/07) “Tips on seeking support group” was the title of a piece in the Akron Beacon Journal and Centre Daily Times (both in Ohio) and Bradenton Herald (Florida), featuring information from the CDC’s CFS web site. (1/23/07) In “Sick and tired: Chronic fatigue nothing to yawn about,” Ocala Star-Banner (Florida) writer Naeeem Sowti profiles two local CFS patients and their experiences with the disease. The article also mentions the CDC awareness campaign. (1/16/07) The Stanford University clinical trial of valgancyclovir as a treatment for a specific subset of CFS patients is the subject of a story in the Palo Alto Daily News. Dr. Jose Montoya will test the effectiveness of the drug in CFS patients with documented Epstein-Barr virus (EBV) and Human Herpesvirus 6 (HHV-6) infections. CFS patient Michael Manson, founder of PetSmart, and Kim McCleary, president & CEO of the CFIDS Association, are quoted in the story by Kristina Peterson. (1/16/07)
CFS is described as one of several mysterious diseases that doctors have been slow to recognize in a Charlotte Observer op-ed piece authored by Jack Calaway. The stories of early sufferers of Lyme disease and Morgellons are told along with CFIDS Association founder Marc Iverson's. (1/10/07) The January 4 issue of The New York Law Journal includes a front-page story about CFS patient Deborah Solomon’s seven-year legal battle for Social Security disability benefits. Solomon first became ill in 1992 and following a 1997 relapse, applied to the Social Security Administration for benefits. In 2000, a judge found her not to be disabled. After numerous appeals, Southern District Court Judge Baer ruled that Solomon’s testimony and that of medical experts, including Solomon’s personal physician and CFS expert Dr. Susan Levine, had not been given enough weight in previous hearings and found Solomon to be disabled and eligible for benefits. (New York) (1/4/07) The Buffalo News (New York, 1/2/07) and the Lowell Tribune (Indiana, 12/26/06) both included brief updates on CFS and the campaign. (1/2/07) (No web links available) 2006 Coverage Chronic fatigue syndrome is mentioned in an article about orthostatic intolerance, a condition that affects many with CFS. The article, published in the Dec. 17 edition of The Capital (Annapolis, Maryland), includes comments from Dr. Peter Rowe, a Johns Hopkins University physician and researcher whose group documented the first observations about CFS patients having blood pressure control problems, particularly with upright posture. Greg Page, a founder of the Wiggles, a band that performs internationally to sold-out audiences of young children and their parents, announced his retirement in Nov. due to orthostatic intolerance; he is quoted in the article too. (12/17/06) The Las Vegas Review-Journal ran a story on Dec. 16 about CFS, quoting from Dorsey Griffith’s Dec. 11 story in the Sacramento Bee (see below) and mentioning the clusters of CFS cases that occurred in Nevada. (12/16/06) (link not available) The Seattle Post-Intelligencer included a short article about CFS in its “alternative medicine” column on Dec. 14. Jane Guiltanan offers basic information about its symptoms, diagnosis and an approach to treatment. (12/14/06) http://seattlepi.nwsource.com/health/295808_altmed14.html?source=rss
A brief article about CFS, doctors’ attitudes about it, and the awareness campaign appeared in the Nov. 27 edition of Tulsa World. Staff writer Kim Archer interviewed Dr. Robert Gray, a Tulsa physician who once treated CFS in his practice, but now is director of a local medical group. (11/27/06) (link no longer active) South Florida Sun-Sentinel writer Nancy McVicar covered CFS in an article that ran on Nov. 24, “Once dismissed as malingering, chronic fatigue syndrome finally getting respect.” She interviewed patients Marla Silverman and Irwin Auster, expert clinician and researcher Dr. Nancy Klimas of University of Miami and CDC lead researcher Dr. William Reeves. (11/24/06) (link no longer active)
CFS patient and CFIDS Association Board member Dr. Terry Hedrick is profiled on the front page of the Nov. 22 issue of The Independent, southern Maryland's newspaper. The story "Finding the energy to fight" describes the acute onset of illness this former federal researcher experienced following surgery and how it has impacted her life and career. Local health care professionals Dr. Coryse Braithwaite and Anne Crowley are interviewed and information about the CFIDS Association is included in the article by Carrie Lovejoy. (11/22/06) The Sacramento Observer, a premier African-American newspaper, featured “Faces of CFS” participant and former Association Board member Wilhelmina Jenkins in its Nov. 22 edition. The article, “A disease few people really understand,” recalls Wilhelmina’s illness onset when she was a physicist and young mother. Staff writer Genoa Barrow also interviewed local patient Pat Henderson and the Association’s Director of Communications, Marcia Harmon, for the story. (11/22/06)
The front page the Nov. 15 edition of the Atlanta Journal & Constitution carries a story about the CDC’s CFS Research Group’s collaboration with the Army to study recruits who wash-out with CFS-like symptoms. The article, “The science of the right stuff,” (appropriately) doesn't mistake these symptoms for CFS “proper,” but reports that the study draws on some of the research linking certain gene expression patterns with severe fatigue and other symptoms. (11/15/06) (link no longer active) The Press-Enterprise newspaper in inland southern California told 14-year-old Kelsea Gill’s story of her courageous battle with CFS and other disabling conditions. “Teen succeeds despite pain, “ by staff writer Joan Osterwalder, appeared in the Nov. 13 edition of the paper. (11/13/06) 16-year-old Lauren Allen of Salt Lake City makes a plea for CFS awareness and expanded research on kids with CFS in her article, “Please don’t forget those with chronic fatigue syndrome,” published in the Salt Lake Tribune on Nov. 11. (link no longer active) “Wake Up and Smell Real Deal on Fatigue” leads a story in the Nov. 7 edition of The New York Post. Writer Marina Vataj interviewed CFS patient Vivian Treves and expert CFS clinician Dr. Susan Levine. (11/7/06) http://www.nypost.com/seven/11072006/entertainment/health/
"Getting Through Each Day—One Day at a Time", written by Lorraine Steefel, RN, MSN, CTN, was published in the NY/NJ editions of Nursing Spectrum Magazine. The article provides information about CFS as seen by Steefel through the eyes of her daughter Trisha who got CFS at age 11. (11/6/2006) “CDC tackles chronic fatigue syndrome” article by wire writer Maggie Fox of Reuters appears in the Orange County Register (Santa Ana, Calif.) along with a boxed timeline of CFS-related events dating back to 1956 and the first report of myalgic encephalomyelitis in the British Medical Journal. (11/4/06) The Sacramento Bee covered CFS, the Faces of CFS exhibit at Sunrise Mall and the October 28 kNOw MORE seminar on its Sunday “Adrenaline” health page. (10/22/06) (link no longer active) The Salt Lake Tribune reported on a week of CFS/fibromyalgia events for local residents, including a presentation by CFIDS Association President & CEO Kim McCleary on Oct. 4, the “Faces of CFS” exhibit at the Salt Lake City Public Library (from Oct. 3-7), and local organization OFFER’s “Walk-A-Block” awareness event held Oct. 7. (10/3/06) (link no longer active) The September 2006 issue of Utah Health magazine carried a story about CFS written by CFIDS Association President & CEO Kim McCleary. Read “CFS: New Insights, New Hope” The Desert Morning News in Salt Lake City posted information about several local CFS/fibromyagia events in its Health & Fitness calendar. (9/25/06) The September issue of SRQ, Sarasota’s premier magazine, included a long feature story about CFS. Local patient Donna Bedits and endocrinologist Dr. Mark Lupo are interviewed, as is CFIDS Association Director of Communications Marcia Harmon. The story was made available online in late November. In Colorado's Vail Trail, writer Caramie Schnell reported on 18-year-old CFS patient Lindsey Simmer. (8/16/06) http://www.vailtrail.com/article/20060816/COVERSTORY/60816003 For the Melrose Free Press in Massachusetts, reporter Carol Brooks Ball reported on CFS patient Pam Gobiel and her 11-year-old niece, who has launched a web-based business as a way to help find a cure for CFS. (8/11/06) (link no longer active) Reporter Janet Wetzel of the Cincinnati Enquirer wrote about CFS patient Joan Shivers. (8/09/06) (link no longer active) Author, CFS sufferer and campaign spokesperson Dorothy Wall shared her story this week in Northern California's ContraCostaTimes. (6/26/06) CFS patient and businessman Rich Carson was the centerpiece of a story in the Santa Barbara News-Press. Rich is also one of the patients whose portrait appears in the Faces of CFS exhibit. (5/26/06) http://www.cfids.org/cfidslink/2006/carson.pdf
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