|
CHRONIC FATIGUE SYNDROME |
|||||||||||||
Exclusively Online* Media CoverageThis list represents original content posted to news and information web sites. The Proceedings of the National Academy of Science publishes “Detection of MLV-related virus gene sequences in blood of patients with chronic fatigue syndrome and healthy blood donors.” The study reports a strong association with murine leukemia virus-related viruses (MLVs), with 32 of 37 (86.5%) CFS patients testing positive for MLV sequences compared to 3 of 44 (6.8%) of healthy blood donors. (8/23/10)
Website in.com notes that “If your fatigue lasts more than six months and is so severe that you can't manage your daily activities, chronic fatigue syndrome or fibromyalgia are a possibility…” and links to WebMD’s CFS pages. (“Causes of Fatigue and Sleepiness”) (8/13/10) Website in.com notes that “If your fatigue lasts more than six months and is so severe that you can't manage your daily activities, chronic fatigue syndrome or fibromyalgia are a possibility…” and links to WebMD’s CFS pages. (“Causes of Fatigue and Sleepiness”) (8/13/10) About.com’s Fibromyalgia & Chronic Fatigue blog reports on “[n]ew research out of Japan suggests that abnormal fluctuations in vitamin E levels are linked to symptom flares and remissions in … CFS… Researchers looked at vitamin E levels in serum (a fluid that can be extracted from blood) and found that they’re lower overall in people with ME/CFS than in healthy controls. They also discovered that vitamin E levels are higher in ME/CFS patients during remission than when symptoms are more severe.” (“Chronic Fatigue Syndrome Research: Difference in Blood Levels of Vitamin E”) (8/11/10) WebMD reports on a Consumer Reports study of the “‘Dirty Dozen’ of ‘Dangerous’ Ingredients:” “A dozen ingredients commonly found in dietary supplements should be avoided, according to a new report, because they are linked to cancer, coma, kidney and liver damage, heart problems, and death.” Among these ingredients is colloidal silver, which the report notes is commonly used to treat CFS. (“Danger Lurking in Some Dietary Supplements?”) (8/03/10)
The Doctor pain blog posts “Chronic Fatigue Syndrome Symptom List” which includes information from the CDC. (7/23/10) Writer Darlene Oakley pens a blog post on women’s issues site EmpowHer titled “What’s New in Chronic Fatigue Syndrome Treatment and Research.” She notes that, despite 25 years of research, there are no known causes of CFS and that treatment still focuses on symptom relief. She focuses on Valcyte and a short discussion of alternative treatments before dispelling myths about the illness. Among her references are the Association’s website, the article in Pain Practitioner written by the Kimberly McCleary and Suzanne Vernon of the Association and the Canadian Consensus diagnostic criteria. (7/14/10) In a separate post citing the same references on EmpowHer, Oakley notes that “Chronic Fatigue Syndrome More Than Fatigue.” She writes, “Since the body commonly fatigues when fighting other physical or psychological battles, it is important to consider other physical manifestation of this imbalance,” citing six symptoms that occur after the onset of chronic fatigue. Oakley advocates the use of a symptom journal to track physical changes for discussion with health care professionals. (7/14/10) The blog Universal-Drugs.net posts a video from the November 3, 2006, launch of the CDC-sponsored CFS public awareness campaign. (7/01/10) Web site DocStoc hosts a PDF version of “Understanding CFS: A Guide For Patients,” the CDC’s CFS patient information brochure. (6/29/10) Dutch media wire service MMD Newswire published a press release titled “Original Press Release from the Netherlands: FDA and NIH confirm ‘XMRV findings’” that stated that “The FDA and the NIH have independently confirmed the XMRV findings as published in Science…” The release quoted remarks made by Dr. Harvey Alter of the NIH “during a closed workshop on blood transfusion held on May 26-27 in Zagreb. Two journalists from the Dutch magazine for health professionals, ORTHO, who have been working on XMRV stories for several months, were able to obtain a copy of the Alter lecture.” (6/22/10)
The AABB (formerly the American Association of Blood Banks) “ …recommending that, as an interim measure until further definitive data are available, its member blood collectors, through the use of donor information materials available at the donation site, actively discourage potential donors who have been diagnosed by a physician with CFS …” The measure comes from the organization’s Interorganizational Task Force on Xenotropic Murine Leukemia Virus-Related Virus reviewed the risk of transfusion transmission of XMRV by individuals with CFS. (6/18/10)
The Wall Street Journal’s Health blog reported that “Chronic Fatigue Sufferers May Be Asked to Avoid Donating Blood.” Writer Amy Dockser Marcus quoted Louis Katz, executive vice-president of medical affairs at Mississippi Valley Regional Blood Center in Davenport, Iowa, and a member of the AABB task force studying whether the virus XMRV, which has been associated with CFS, poses a threat to the U.S. blood supply. Her post says, “Katz said — emphasizing that the AABB task force’s recommendations aren’t out yet and he was speaking for himself — that the latest draft versions recommend to AABB members that potential donors who currently have or have had CFS be advised they should not give blood.” (6/14/10)
A post on the Cancer Type blog includes a video snippet of CFS clinician and researcher taken from the 2006 press conference in Washington, D.C. that launched the public awareness campaign that ended in September 2009. (6/13/10) Blogger and CFS patient Jody Smith spotlights the work of Dr. Gordon Broderick, one of the Association’s funded researchers, in a post titled “Chronic Fatigue Syndrome: Sick People Must Fund Their Own Research” on EmpowHer. (6/10/10) CFS patient Claudia Goddell shares her “a-ha” moment of something positive coming from her illness in this short video produced by Mutual of Omaha. (5/27/10) The Association, as a member of the Overlapping Conditions Alliance, participated in the development of the Campaign to End Chronic Pain in Women, “an advocacy campaign fighting to end discrimination and improve care for women suffering from chronic pain. The Campaign aims to improve the quality of women’s lives by raising awareness about chronic pain conditions that disproportionately impact women, as well as the neglect, dismissal and discrimination faced by women living with chronic pain under the current U.S. healthcare system.” Following a Capital Hill briefing on May 19 sponsored by the Congressional Caucus for Women’s Issues, news about the campaign was published on Yahoo Finance (“The Overlapping Conditions Alliance Launches the ‘Campaign to End Chronic Pain in Women’ on Capitol Hill, to Fight Discrimination Against Women in U.S. Healthcare”). (5/19/10)
eZine Articles posts “Chronic Fatigue Syndrome – National Health Care Crisis.” The story, which states, “...CFS is an absolute crisis of monumental proportions in healthcare, in lifestyle and in the lives and dollars lost among those who are sick and in everyone else’s life…”, includes information from the CDC about CFS. (5/12/10) The Cancer Type blog embeds the public service announcement produced as part of the public awareness campaign. (5/13/10) A post on the Dreams at Stake blog, authored by a CFS patient, aims to educate readers about the illness and encourages them to get involved. It links to the Association’s Grassroots Action Center and SolveCFS video. (5/11/10) Third Age posts an article titled “Chronic Fatigue Syndrome: What Are the Signs?,” which pulls information from www.womenshealth.gov, a site sponsored by the U.S. Department of Health and Human Services. It offers basic facts about the illness. (4/29/10) Responses to the question, “What are the symptoms of chronic fatigue syndrome?” posted on RxSheet.com include information from and a link to the CDC’s CFS information. (4/25/10) A video posted on the Triple Crown Newsletters Blog shares information about life with CFS and quotes the CDC in a plea to change the name of the illness. (4/22/10) BioMed Central’s Family Practice site publishes “U.S. healthcare providers’ knowledge, attitudes, beliefs and perceptions concerning chronic fatigue syndrome,” which reports on a study conducted by CDC researchers to “ascertain United States (U.S.) healthcare providers’ awareness of CFS and to assess their knowledge, attitudes, and beliefs (KAB) related to diagnosis and management of the illness.” They surveyed more than 3,000 health care providers and found that “healthcare providers in both samples were aware of CFS and exhibited a high level of knowledge. … The primary areas for future education should address diagnosis and management of CFS and should be delivered through those venues providers indicated they primarily use. Data from this study provide a benchmark for evaluation the success of these future efforts.” (4/21/10)
MSNBC.com lists CFS as the top condition linked to allergies in an article titled “Tired? Depressed? It may be hidden allergies.” (04/08/10) Medical News Today posts a thorough and well-written article about CFS titled “What Is Chronic Fatigue Syndrome? What Causes Chronic Fatigue Syndrome?” Headings include signs and symptoms, causes, diagnosis, treatment and more. (4/08/10) Canadian news website HealthZone reports that blood supply officials have banned anyone who has CFS from donating blood while the link between XMRV and CFS is explored. “While stressing that researchers have found no definitive links between the virus, known as XMRV, and the chronic fatigue, Canadian Blood Services says they will err on the side of caution and implement the new donation restrictions,” says the article, noting that, “Canada is the first country in the world to make the move …” (04/06/10)
An untitled post on the blog dandre3645021 reports on studies conducted by researchers at the CDC and in Sweden that connect CFS to childhood stress, trauma and abuse. (4/03/10) “Early Symptoms of Chronic Fatigue Syndrome,” an article posted on Livestrong, quotes information from the CDC about symptoms of the illness. (3/31/10) A post on the New Voices for Research blog titled “Invisible But Still Very Real: Chronic Fatigue Syndrome” quotes extensively from the CDC as it educates readers about the illness and encourages sensitivity. (3/29/10) Livestrong, the website of Lance Armstrong’s nonprofit dedicated to cancer research and awareness, publishes an article titled “Causes for Fatigue in Females” includes CFS among those causes and quotes information from the CDC about symptoms of the illness. (3/25/10) We-Love-Health.com posts “Several Facts You Need to Get the Idea about Chronic Fatigue Syndrome,” including some from the CDC. (3/23/10) A post on the Blissfully Domestic blog notes that March is recognized as CFS Awareness Month and provides helpful information about the illness, as well as links to the Association’s and CDC’s websites. (3/21/10) Women’s health information site Healthy Women updates its CFS information. Dr. Suzanne Vernon, the Association’s scientific director, reviewed the article. (3/19/10) Article Dashboard posts “Chronic Fatigue Syndrome Symptom List,” which includes a list and other facts from the CDC. (3/18/10) A post on the Health And Fitness Advice blog asks “Why People Get Chronic Fatigue Syndrome” and notes that the CDC has acknowledged the illness is real. (3/12/10)
Information from the CDC about CFS introduces a post titled “What Causes Chronic Fatigue Syndrome?” on the Reasons To Quit Smoking blog. (3/12/10)
A post on the MicroNutra Health Journal Web site discusses “Chronic Fatigue Syndrome: Syndrome Of Uncertain Origin,” and notes that the CDC has legitimized the illness. (3/11/10) World Village notes that March is celebrated as CFS Awareness Month and quotes the CDC’s prevalence statistics in this brief post about the illness. (3/08/10) A post on the You Feeling Well? blog answers “What are the Chronic Fatigue Symptoms” and includes information from the CDC’s CFS pages. (3/06/10) EverydayHealth.com has updated its section on CFS, publishing a package of stories centered on “Basics,” “Treatment” and “Management” of the illness. (3/03/10) The Chronic Fatigue Syndrome blog posts the radio PSA produced for the public awareness campaign. (““Not In My Head” Chronic Fatigue Syndrome Radio PSA”) (3/03/10) An article in online publication American Journal cites the CDC in a report on a study of post-exertional malaise published in the “Journal of Women´s Health,” which concludes that it’s “…both a real and an incapacitating condition for women with chronic fatigue syndrome.” (“Chronic Fatigue Syndrome Both Real and Incapacitating Say Researchers”) (3/02/10) A post on the Sleep Without Thinking blog titled “Chronic Fatigue Syndrome – CHANGE the NAME (ME/CFS/CFIDS)” quotes CDC information on the disability level of CFS in a plea to change the name, and therefore the perception of, the illness. (3/02/10) MicroNutra Health Journal posts a history of CFS. (“Historical Aspects of Chronic Fatigue Syndrome”) (03/01/10) The HIV/AIDS blog includes notes that the CDC finds CFS to more prevalent in women than men in post titled, “Is Chronic Fatigue Syndrome (cfs) the Yuppie Flu?” (2/24/10) Article Plugin posts “Recognizing The Signs And Symptoms Of Chronic Fatigue Syndrome,” an article that quotes the CDC in describing the difficulty in diagnosing CFS. (2/23/10) “Chronic Fatigue Syndrome Signs and Symptoms,” an article posted on Just EZine, includes information from the CDC in this general discussion about the illness. (2/23/10) An article on Health Articles Library offers a brief history of CFS and notes that, “A report in the New England Journal of Medicine quotes [former] Dr. Stephen Straus of the National Institute of Allergy and Infectious Diseases, [who] says that chronic fatigue could characterize an abnormal response to infection.” (“The New England Journal of Medicine quotes Dr. Stephen Straus of the National Institute of Allergy”) (2/21/10) “Chronic Fatigue Syndrome Signs and Symptoms,” an article posted on Niche Articles, includes information from the CDC in this general discussion about the illness. (2/21/10) A post on the MicroNutra Health Journal Web site that discusses various treatments for “Chronic Fatigue Syndrome and Muscle Pain” directs readers to the CDC’s CFS pages for additional information. (2/14/10) The Baltimore Sun’s website and print edition health pages describe the “Signs of chronic fatigue syndrome” in a brief expert advice column that quotes from the CDC’s CFS information. (2/08/10) “Identifying Chronic Fatigue Syndrome Symptoms,” a story posted on the Newsline Articles website, includes patient interviews, references to CDC information about the illness and general information about symptoms. (2/07/10)
The CFS Report blog examines “CFS, Reeves, and the CDC: A Rich History but A Poor Past.” (2/07/10)
AtlantaUnfiltered reports on the removal of Dr. William Reeves from the CDC’s CFS program. (“CDC reassigns controversial head of chronic fatigue research”) (2/05/10)
A post on the Healthy Diet Plan blog notes that, “The CDC reports claim that nearly 50% of the patients may gain partial or complete recovery within the first 5 years after the appearance of symptoms” in its brief offering of treatment suggestions. (“Treat Chronic Fatigue Syndrome”) (2/04/10) The blog 91 Outcomes notes that, “Metabolic Syndrome associated with Chronic Fatigue Syndrome, study shows.” According to the post, “A new study, published January 25 in the medical journal Metabolism, found that metabolic syndrome was found more frequently in people suffering from Chronic Fatigue Syndrome/Myalgic Encephelopathy (CFS/ME) than people who did not have the disease.” The study cited was conducted by the CDC. (2/03/10) The Fibromyalgia & CFS Blog on About.com asks, “Reeves Is Out -- New Directions for CDC's Chronic Fatigue Syndrome Research?” (2/02/10)
“How is Fatigue Related to Heart Rate?,” a post on the High Diet blog, quotes the CDC’s prevalence figure and symptom list when describing CFS. (2/01/10) A January 28 post on the Easy Cash 4 All blog titled, “Chronic fatigue syndrome,” asserts that, “CDC says the first credible evidence for a biological basis for CFS came in 2006 when 20 researchers from different specialties each connected to the disease genes involved in the sympathetic nervous system and HPA axis.” The post goes on to focus on immune system involvement. (1/28/10) A post on the Health Daze blog includes the CDC’s prevalence figure for CFS and other facts about the illness as it educates readers. (“Chronic Fatigue Syndrome”) (1/27/10) “How Is Chronic Fatigue Syndrome Diagnosed?” asks an entry on the MicroNutra Health Journal website. The post notes that, “Only recently has Chronic Fatigue Syndrome been gaining attention as an actual illness …” and provides the CDC’s diagnostic criteria and other information about CFS from that agency. (1/27/10) Signsofthetimes posts “Lynn Gilderdale's distressing diary shows that Chronic Fatigue Syndrome/ME can be real and catastrophic,” a blog on and link to a story in the U.K.’s “Telegraph” newspaper that publishes this CFS patient’s wishes to die to end the pain and suffering of the illness. Information about CFS from the CDC is included in a comment on the post. (1/27/10) A student asks, “Do I have chronic fatigue syndrome?” on the Yahoo Answers discussion board. Among the reader responses is a link to the CDC’s CFS pages. (1/26/10) Information from both the CDC and the NIH is quoted in an article titled, “Common Symptoms of Chronic Fatigue Syndrome,” posted on Suite101.com. (1/24/10) The MicroNutra Health Journal website answers “What Increases My Risk For Chronic Fatigue Syndrome?” with a variety of resources, including Medscape and the CDC. The brief article notes that, “Because there is no sure cause of Chronic Fatigue Syndrome, trying to understand your risk of falling victim to it can be a vague undertaking. However, researchers have been able to establish certain risk factors that may contribute to the development of CFS.” (1/15/10) A different MicroNutra Health Journal post titled “Genes Linked To Chronic Fatigue Syndrome” also quotes from the CDC’s CFS information. (1/15/10) A story about CFS posted on the Web site ArticlesBase.com references CDC information about the illness as it provides a general overview. (1/12/10) A post on the Miracle Herbs blog titled “Chronic Fatigue Syndrome – Overview” notes the CDC’s case definition as it educates readers about the illness and promotes Ayurvedic treatments. (1/12/10)
A post titled “Treating Chronic Fatigue Syndrome” on the Natural Pain Remedies blog notes that “…CDC reports claim that nearly 50% of the patients may gain partial or complete recovery within the first 5 years after the appearance of symptoms.” The post suggests several treatment and coping methods. (1/08/10) A post on The Specific blog titled “Holiday Stress or Chronic Fatigue Syndrome?” both quotes from and links to the CDC’s CFS pages in this short presentation of basic facts about the illness. (1/06/10) A post on The Health Success Site Web site about the illness includes statistics and information from the CDC. (“What is Chronic Fatigue Syndrome?”) (1/01/10) |
 | ||
| ||