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Family and Friends
Although its name focuses on only one aspect of the
illness, chronic
fatigue and immune dysfunction syndrome (CFIDS) is a serious and complex illness marked by numerous symptoms
including disabling fatigue, problems with information processing and memory, flu-like symptoms, pain
in the joints and muscles, dizziness, nausea, sleep disorders and headache.
Strong support from family and friends is very important
to people
with this debilitating and poorly understood illness as they work to integrate the challenges of CFIDS
into their lives.
The keys to helping a person with CFIDS (PWC) are
education, communication
and emotional support. Stay informed by reading The CFIDS Chronicle and
by visiting other areas of this Web site including, Tips for Parents and For Those Who Care where you'll
find detailed information
and helpful strategies for caregivers, partners, family members and friends, and Family Member Stories for insights
into how several families have learned to adjust and thrive in spite of a chronic illness.
Keep the lines of communication open
and listen. Your willingness
to listen will help validate and acknowledge the seriousness of the illness. But be cautious about your
well-intended comments that may be perceived as insensitive. Instead of saying "I know how you feel. I
have a lot of the same symptoms as you," keep your comments constructive and caring such as "I'm sorry
that you're feeling so poorly."
Be as understanding and kind as you
can, reassuring the PWC of
your love and support. Try to continue to enjoy activities together, modifying them as necessary to create
a new "normal" with your friend or partner. You can also show you care by helping in tangible ways, running
errands, balancing the checkbook and walking the dog.
Finally, it's important to recognize
that CFIDS also presents challenges
and brings changes to your life. Take time
for yourself and give yourself credit
for being there for someone who needs and appreciates your love and support.
Related Information
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