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Cognitive Behavioral Therapy and CFS
Cognitive behavior therapy (CBT) is therapy that is
based on a person’s perception of his or her
illness and
the impact that it has on the person’s life. Working with a CBT therapist, the person can examine
beliefs, concerns and coping behaviors and modify these as necessary, to develop constructive coping strategies.
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Research has shown that CBT can improve function
and
symptom management for people with CFS. It appears to have limited effect on pain and fatigue. CBT will
not cure
CFS, nor
will it alleviate all symptoms for people with the illness. CBT does not address controversies surrounding
the origins
of CFS. It is simply intended to assist the individual to better manage the illness.
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Psychological factors are relevant to any illness
process. CBT has been shown to help people deal with these factors and better cope with
the life-altering
issues of chronic illness. Awareness of the role that stress can play in exacerbating the symptoms of
CFS
is essential. CBT assists people to better recognize and manage the stressors in their lives.
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CBT often involves the introduction of paced, slowly
graduated physical activity. It is imperative that any therapeutic activity
plan (designed by a trained professional) be highly individualized for each
person with CFS, based on their present activity tolerance. Even people with
extremely limited tolerance can be helped to very gradually improve strength
and conditioning. People with CFS often engage in "boom or
bust" cycles:
when feeling well, they do too much, and then become exhausted for an extended period (a phenomenon called
post-exertional malaise). Managing energy by pacing activities is essential to improved function and symptom
management.
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It’s important to learn some
essential facts
about CBT and try to focus on the potential benefits that may be achieved. CBT is used to
improve coping and symptom management of many chronic illnesses, including asthma, diabetes and heart
disease.
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Carefully adhering to CBT protocol is critically
important to successful therapy. In research studies, people with CFS have
higher drop-out rates in CBT compared to other types of therapy. For people
with CFS, worsening symptoms is the main
reason cited
for discontinuing CBT. Again, this may be avoided if a paced, personalized plan is followed. When activities
are
tailored to the individual’s capabilities, a skilled professional can assist in setting and reaching
realistic goals.
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Multiple and varied biological, psychological and
social
factors all impact a person’s feelings about CBT, particularly if they are
aware that CFS is commonly labeled as a psychiatric illness (for example, many people
have probably
been told that CFS "is all in your head"). Learning as much as possible about CBT and considering
information based on facts can be beneficial when making a decision about this treatment method.
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CBT requires special training and must be administered
by
a skilled specialist. It should be noted that psychologists are not the
only health care professionals that can successfully guide CBT. Nurses,
physical and occupational therapists are examples of multidisciplinary providers who
are trained
in CBT. The CBT therapist needs to be familiar with CFS, be aware of the evidence for CFS
as a biologically-based disorder and validate a person’s experience of living with a misunderstood illness.
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The National Association
of Cognitive Behavioral Therapists available
at 1-800-853-1135
may be able to assist in finding a trained provider in your area. Contacting local mental health provider
groups, physical and occupational therapy practitioners or health care organizations may be helpful as
well.
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CBT can be expensive and may not be covered by insurance.
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