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Media: Story Ideas
There have been many recent advances in chronic fatigue
and immune
dysfunction syndrome (CFIDS) research. Below are some potential story angles for covering CFIDS that reflect
new understanding and knowledge of the science behind this illness and its public health implications.
Please contact us for more information or assistance in finding
CFIDS patients and medical experts to interview.
Invisible Illness Is Public Health Problem There
is no
reliable diagnostic test yet for CFIDS, making it in some ways an "invisible" illness. According to research,
less than 15% of all individuals who suffer from CFIDS are diagnosed, and more than 85%
remain ill
with little or no appropriate medical care for their illness. This means that a substantial number
of health
care professionals are neither recognizing nor treating CFIDS in practice. See the Association's
fact
sheet on CFIDS and the medical section of
this web site for more information on the scope of this unrecognized public health problem.
Medical Professional Survey
CFIDS is estimated to affect as many as 800,000 Americans, but the medical
community lacks the knowledge and tools to diagnose it effectively. A survey
conducted by the CFIDS Association and fielded to more than 8,100 medical
professionals has revealed CFIDS can be as serious and disabling as other more
well known chronic illnesses, including multiple sclerosis, lupus and rheumatoid
arthritis. The survey reveals medical professionals' opinions on the causes of
CFS, how to diagnose and treat it and what the medical community needs to better
care for patients. See our survey
media kit for more information.
Research Symposia The CFIDS Association's
research symposia
series is gathering experts to evaluate current research findings
on CFIDS, identify the most promising next steps, define research and funding
priorities and create collaborative research teams. The first symposium
in the series, held in December 2000 looked at possible connections between
CFIDS and Orthostatic Intolerance (OI). The second symposium, held March
19-20, 2001, explored the role of Neuroendocrine systems in CFIDS. The
third symposium on the Immunology of CFIDS, was held October
22-23, 2001. Click here
for more information.
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