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In this Issue

August 2008
CFIDSLink Electronic Newsletter 

CFIDSLink is e-mailed monthly free of charge to all those interested. To sign up for the electronic newsletter visit http://www.cfids.org/subscribe.asp

In this Issue

  • Research Matters
        Study Identifies Potential Gene Markers
        EBV Study Sheds Light on Immune Activation
  • Treatment: Hot Weather Orthostatic Tips
  • CFSAC Letter Goes to Secretary Leavitt
  • Research Campaign: Questions & Answers
  • Personal Stories: Ben Crichton

Research Matters

Study Identifies Potential Gene Markers
A paper published by Takuya Saiki, MD, and his colleagues in the journal Molecular Medicine describes a defined gene cluster that could ultimately prove useful for differential diagnosis of CFS.
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EBV Study Sheds Light on Immune Activation
The Journal of Affective Disorders recently published a study identifying pathways that correlate with fatigue and symptoms of chronic active Epstein-Barr virus (EBV) infection. This could have implications for understanding CFS. 
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Treatment: Hot Weather Orthostatic Tips
Many people with CFS experience orthostatic intolerance—dizziness, nausea and increased fatigue associated with upright posture. These symptoms are often worse in hot weather. Here’s a two-page “print-and-go” list of tips to help you cope through these warm-weather months (and year round, if needed).
Get the full story (in PDF format)>>

CFSAC Letter Goes to Secretary Leavitt
On July 15, 16 members of the U.S. House of Representatives sent a letter to Secretary of Health Michael Leavitt, urging him to renew the charter for the CFS Advisory Committee before it expires on September 5, 2008. See if your representative signed the letter, and find out what you can do if he or she didn’t.
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Research Campaign: Questions & Answers
The Campaign to Accelerate CFS Research is itself accelerating, but we still need your help to reach the $1 million goal. As we enter the home stretch, Association president and CEO Kim McCleary answers the questions she’s most often been asked about the campaign.
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Personal Stories: Ben Crichton
Ben Crichton, now 30, has had CFS for more than half his life. Though he’s struggled with adapting to the challenges of living with chronic illness, he hasn’t let his life stand still. And now he’s preparing to marry and embark on a whole new phase of life.
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