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Winter 2004 

Bulletin Board
Information, resources and opportunities for people with CFIDS (PWCs)

Bulletin Board space is provided at no cost to individuals or groups who conduct nonprofit or volunteer activities for the CFIDS community. The CFIDS Association of America assumes no responsibility for content. Send notices to The CFIDS Chronicle at chronicle@cfids.org or mail to PO Box 220398, Charlotte, NC 28222-0398, Attn: Chronicle.


Resources

The Cost Containment Research Institute has published a revised edition of its booklet, "Free and Low-Cost Prescription Drugs," to help consumers find patient assistance programs provided by the major drug companies. To receive a copy, send a check for $6 to Institute Fulfillment Center, Booklet #PD-75, PO Box 210, Dallas, PA 18612-0210. For information, see www.institutedc.org.

Medicare is another source of information about free and reduced-priced medications. The telephone number 1-800-MEDICARE acts as a clearinghouse for information on drug companies’ patient assistance programs, which offer discount programs for select drugs.

Singles with CFIDS or fibromyalgia are invited to find friends, sharing, bonding or possibly even romance at the Internet group CFIDS and Fibro Singles. For more information, visit http://health.groups.yahoo.com/group/CfidsandFMSingles/

People disabled by chronic illnesses have a new opportunity to earn a college degree through self-paced distance education through DePaul University’s School for New Learning. For details, visit www.snlonline.net or call 1-866-SNLFORU.


Fund raisers

The Long Island CFIDS Society is selling 2004 Entertainment discount books to raise funds for The CFIDS Association of America’s research program. Books for many areas of the U.S. are available. Visit www.cfids.org/community/shop-give.asp for a link to order your book today.


Conferences

Frontiers of Knowledge in Sleep & Sleep Disorders: Opportunities for Improving Health and Quality of Life will be held March 29–30 on the National Institutes of Health campus in Bethesda, Md. Registration is free and open to all who preregister. For more information visit www.sleeptranslation.com (link currently not active) or call 301-435-0193.

Advances in Understand-ing and Treating Chronic Fatigue Syndrome and Fibromyalgia will be held at the Salt Lake Sheraton in Salt Lake City. A health care provider conference will be on May 14, and a patient conference on May 15. For more information visit http://cme.ihc.com or call 801-408-1976.

Identifying the Causes & Exploring the Newest Treatment Options for Fibro-myalgia and Chronic Fatigue Syndrome will be held May 14–15 at the Marriott Hotel in Overland Park, Kan. For further information call Yvonne Keeny at 913-384-4673 or visit www.fibrocoalition.org.

Myopain ’04, the sixth World Congress on Myofascial Pain and Fibromyalgia, will be held July 18–22 in Munich, Germany. For more information, visit  http://www.myopain.org/ or call 210-567-4661 (in the U.S.).

The American Association for Chronic Fatigue Syndrome will hold its seventh international conference on CFS, fibromyalgia and related illnesses October 8–10 in Madison, Wisc. The Wisconsin CFS Association is hosting this meeting, which includes clinical, research and patient sections. For more information, visit www.aacfs.org/.