RETURN
TO TABLE OF CONTENTS Winter
2004
Bulletin Board Information, resources
and opportunities for people with CFIDS (PWCs)
Bulletin Board space is provided at no cost to individuals
or groups who conduct nonprofit or volunteer activities for the CFIDS community.
The CFIDS Association of America assumes no responsibility for content. Send
notices to The CFIDS Chronicle at chronicle@cfids.org or mail to PO Box 220398,
Charlotte, NC 28222-0398, Attn: Chronicle.
Resources
The Cost Containment Research Institute has published a
revised edition of its booklet, "Free and Low-Cost Prescription Drugs," to help
consumers find patient assistance programs provided by the major drug companies.
To receive a copy, send a check for $6 to Institute Fulfillment Center, Booklet
#PD-75, PO Box 210, Dallas, PA 18612-0210. For information, see
www.institutedc.org.
Medicare is another source of information about free and
reduced-priced medications. The telephone number 1-800-MEDICARE acts as a
clearinghouse for information on drug companies’ patient assistance programs,
which offer discount programs for select drugs.
Singles with CFIDS or fibromyalgia are
invited to find friends, sharing, bonding or possibly even romance at the
Internet group CFIDS and Fibro Singles. For more information, visit
http://health.groups.yahoo.com/group/CfidsandFMSingles/
People disabled by chronic illnesses have a new opportunity to
earn a college degree through self-paced distance education through DePaul
University’s School for New Learning. For details, visit
www.snlonline.net or
call 1-866-SNLFORU.
Fund raisers
The Long Island CFIDS Society is selling 2004 Entertainment
discount books to raise funds for The CFIDS Association of America’s research
program. Books for many areas of the U.S. are available. Visit
www.cfids.org/community/shop-give.asp
for a link to order your book today.
Conferences
Frontiers of Knowledge in Sleep & Sleep Disorders:
Opportunities for Improving Health and Quality of Life will be held March 29–30 on the National Institutes
of
Health campus in Bethesda, Md. Registration is free and open to all who
preregister. For more information visit www.sleeptranslation.com (link currently
not active) or call 301-435-0193.
Advances in Understand-ing and Treating Chronic Fatigue
Syndrome and Fibromyalgia will be held at the Salt Lake Sheraton in Salt
Lake City. A health care provider conference will be on May 14, and a patient
conference on May 15. For more information visit
http://cme.ihc.com or call 801-408-1976.
Identifying the Causes & Exploring the Newest
Treatment Options for Fibro-myalgia and Chronic Fatigue Syndrome will be
held May 14–15 at the Marriott Hotel in Overland Park, Kan. For further
information call Yvonne Keeny at 913-384-4673 or visit
www.fibrocoalition.org.
Myopain ’04, the sixth World Congress on Myofascial Pain and Fibromyalgia,
will be
held July 18–22 in Munich, Germany. For more information, visit
http://www.myopain.org/ or call 210-567-4661 (in the U.S.).
The American Association for Chronic Fatigue Syndrome will
hold its seventh international conference on CFS, fibromyalgia and related
illnesses October 8–10 in Madison, Wisc. The Wisconsin CFS Association is
hosting this meeting, which includes clinical, research and patient sections.
For more information, visit
www.aacfs.org/.
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