RETURN
TO TABLE OF CONTENTS Winter 2004
Association News Activities and
opportunities from The CFIDS Association of America
Almost $300,000 raised in Annual Fund
drive More than 1,100 CFIDS Association friends contributed to the
2003 Annual Fund, raising a total of $291,834 to help meet the ongoing need for
flexible, unrestricted income in the fight to end CFIDS.
The Annual Fund drives vital programs in CFIDS awareness,
education, public policy and research. These are valuable efforts important to
people with CFIDS and those who care about them.
Thanks to Association volunteers and donors who helped make
the 2003 Annual Fund a success. Special thanks to Beverley
Horton, whose $60,000 matching gift inspired so many others to give as
generously as possible.
Complete financial results will be available in the
Association’s 2003 Annual Report due out in May.
Association staffing changes Mark
Giuliucci resigned from the Association’s staff this fall due to family
needs. Mark had served as editor of The CFIDS Chronicle and The CFS
Research Review since 2001. Public Relations Coordinator Leah
Moseley, also a member of the Association’s team since 2001, recently
relocated to the Washington, D.C., area, where she was offered a position with
DeVry Univer-sity. We are sorry to see the departure of these two valued staff
members.
We are pleased to welcome Marcia Harmon as
the Association’s Director of Publications. Marcia’s wealth of experience will
be a strong asset to the Association’s publications, including the
Chronicle and CFS Research Review, which she will edit.
Vicki Walker, a member of the Association’s staff from
1993-2003, is serving as guest editor of this issue of The CFIDS
Chronicle.
Welcoming new Board members &
officers New directors and officers were elected by The CFIDS
Association’s Board of Directors this fall. Officers for the 2004 Board will
be: Chairman Jonathan Sterling; Vice Chairman Joseph
Lane; Treasurer Jane Perlmutter; and Secretary
Barbara Comerford.
The Board regretfully accepted the resignation of director
Beth Levine, due to health reasons. Beth had served on the Board since 2001. Two
new directors were elected:
Susan L. Jacobs, Esq. is a partner at a
general practice law firm and is actively involved in her community of
Providence, R.I. She is president of the Attleboro Area Bar Association and has
served on the boards of several organizations, including the Attleboro Museum,
the Brown Hillel Foundation and Big Sister Association of Greater Boston, where
she was awarded "Big Sister of the Year" in 1994. Ms. Jacobs’ interest in CFIDS
stems from her long-standing friendship with a person with CFIDS.
Lynn Holaday Royster, PhD, JD, is a professor
at DePaul University, where she serves as mediator and trainer in the Center for
Conflict Resolution. Her interests include creating equal educational
opportunities for college students with disabilities such as CFIDS. She was
instrumental in piloting a distance learning bachelor’s degree program for
disabled students at DePaul University’s School for New Learning. Dr. Royster’s
29-year-old son Patrick has suffered from CFIDS for more than half his
life.
CFIDSLink grows in popularity CFIDSLink,
the Associ-ation’s free monthly e-mail newsletter, currently has nearly 16,000
subscribers and the list continues to grow. To sign up, visit
www.cfids.org/subscribe.asp or
call the Resource Line at 704-365-2343.
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