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Winter 2004 

Association News
Activities and opportunities from The CFIDS Association of America

Almost $300,000 raised in Annual Fund drive
More than 1,100 CFIDS Association friends contributed to the 2003 Annual Fund, raising a total of $291,834 to help meet the ongoing need for flexible, unrestricted income in the fight to end CFIDS.

The Annual Fund drives vital programs in CFIDS awareness, education, public policy and research. These are valuable efforts important to people with CFIDS and those who care about them.

Thanks to Association volunteers and donors who helped make the 2003 Annual Fund a success. Special thanks to Beverley Horton, whose $60,000 matching gift inspired so many others to give as generously as possible.

Complete financial results will be available in the Association’s 2003 Annual Report due out in May.

Association staffing changes
Mark Giuliucci
resigned from the Association’s staff this fall due to family needs. Mark had served as editor of The CFIDS Chronicle and The CFS Research Review since 2001. Public Relations Coordinator Leah Moseley, also a member of the Association’s team since 2001, recently relocated to the Washington, D.C., area, where she was offered a position with DeVry Univer-sity. We are sorry to see the departure of these two valued staff members.

We are pleased to welcome Marcia Harmon as the Association’s Director of Publications. Marcia’s wealth of experience will be a strong asset to the Association’s publications, including the Chronicle and CFS Research Review, which she will edit. Vicki Walker, a member of the Association’s staff from 1993-2003, is serving as guest editor of this issue of The CFIDS Chronicle.

Welcoming new Board members & officers
New directors and officers were elected by The CFIDS Association’s Board of Directors this fall. Officers
for the 2004 Board will be: Chairman Jonathan Sterling; Vice Chairman Joseph Lane; Treasurer Jane Perlmutter; and Secretary Barbara Comerford.

The Board regretfully accepted the resignation of director Beth Levine, due to health reasons. Beth had served on the Board since 2001. Two new directors were elected:

Susan L. Jacobs, Esq. is a partner at a general practice law firm and is actively involved in her community of Providence, R.I. She is president of the Attleboro Area Bar Association and has served on the boards of several organizations, including the Attleboro Museum, the Brown Hillel Foundation and Big Sister Association of Greater Boston, where she was awarded "Big Sister of the Year" in 1994. Ms. Jacobs’ interest in CFIDS stems from her long-standing friendship with a person with CFIDS.

Lynn Holaday Royster, PhD, JD, is a professor at DePaul University, where she serves as mediator and trainer in the Center for Conflict Resolution. Her interests include creating equal educational opportunities for college students with disabilities such as CFIDS. She was instrumental in piloting a distance learning bachelor’s degree program for disabled students at DePaul University’s School for New Learning. Dr. Royster’s 29-year-old son Patrick has suffered from CFIDS for more than half his life.

CFIDSLink grows in popularity
CFIDSLink, the Associ-ation’s free monthly e-mail newsletter, currently has nearly 16,000 subscribers and the list continues to grow. To sign up, visit www.cfids.org/subscribe.asp or call the Resource Line at 704-365-2343.