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In this Issue
 November 2005
CFIDSLink Electronic Newsletter

CFIDSLink is e-mailed monthly to all those interested. To sign up for the electronic newsletter visit  http://www.cfids.org/subscribe.asp.

 In this Issue

  • Limited Edition Seasonal Greeting Cards Now Available!
  • CFIDS Experts to be Featured on NPR Program November 3
  • Handling the Holidays
  • New Book About the CFIDS Experience Hits the Shelves Soon
  • Living with CFIDS: Personal Stories
  • Five New Directors Join the Association’s Board this Month
  • Discounted Tickets Still Available!
  • Ask the CEO
  • Bulletin Board Notices

 

Limited Edition Seasonal Greeting Cards Now Available!
Fight CFS, not crowds, this holiday season with greeting cards that support efforts to end CFS! Featuring watercolors by a young person with CFS, these lovely cards are a wonderful way to send greetings of the season to friends and family. And because they’re blank on the inside, the cards are also perfect for thank you notes and your general correspondence.

Every sale directly benefits efforts to advance CFS awareness, education, public policy and research and to speed progress toward better health for people with CFS.

Visit http://www.cfids.org/cfidslink/2005/seasonal-cards.asp to learn more and to place your order. Don’t delay, quantities are limited.


CFIDS Experts to be Featured on NPR Program on November 3
On Thursday, November 3, Drs. Nancy G. Klimas (University of Miami) and Peter C. Rowe (Johns Hopkins University) along with CFIDS Association president & CEO Kim McCleary will be guests on “Charlotte Talks,” a one-hour program on Charlotte’s National Public Radio affiliate, WFAE. The panel will share the latest research news with host Mike Collins, offering a preview of the program they will give as part of the Association’s Education and Empowerment Series in Charlotte on November 13. Listeners in the Charlotte area can hear the program from 9 a.m. until 10 a.m. on 90.7FM A repeat broadcast is offered at 7 p.m. Programs are also archived on the station’s website and are available by podcast subscription, too.

“Charlotte Talks” web page: http://www.wfae.org/wfae/nav1024.cfm?cat=18&subcat=92

WFAE’s Archives web site http://www.wfae.org/wfae/nav1024.cfm?cat=18&subcat=93

Podcast subscription page: http://www.wfae.org/wfae/nav1024.cfm?cat=15&subcat=130


Handling the Holidays
Celebrating the holidays can be emotionally and physically draining for everyone. But people with CFIDS (PWCs) and their caregivers can have an especially difficult time. Counselors Lisa Burdick, MA and Bill Gareau, MHDL offer seven suggestions to help PWCs and those who care about them celebrate the holidays within the boundaries that CFIDS can create. Read more at http://www.cfids.org/cfidslink/2005/holidays.asp.

New Book about the CFIDS Experience Hits the Shelves Soon

Dorothy Wall’s book, Encounters With the Invisible: Unseen Illness, Controversy and Chronic Fatigue Syndrome, is due out this month from Southern Methodist University Press. It is a stirring collection of essays about Dorothy’s experience with CFS and social and cultural responses to the illness. The book includes an afterword by renowned CFIDS expert Dr. Nancy Klimas and it has already earned high praise from reviewers. Read more about it and/or order your advance copy at http://www.dorothywall.com/index.html.


Living with CFIDS: Personal Stories
Many CFIDSLink readers have been sharing stories of how CFIDS impacts their lives and the lives of their families. In this month's column, you’ll meet Hallie Kretsinger. When CFIDS stormed into her life in 1998, Hallie turned what little energy she had to painting.

Visit http://www.cfids.org/cfidslink/2005/hallie.asp to read about Hallie, then please consider sharing your own. Send your personal stories to Marcia Harmon at stories@cfids.org.

Five New Directors Join the Association’s Board this Month
The CFIDS Association’s Board of Directors will welcome five new members this month and will thank two members leaving at year-end. Recently elected to the Board are:

Bruce Allshouse, New Castle, Del.
Dr. Lucinda Bateman, Salt Lake City, Utah
Rod Converse, Baxter, Minn.
Dr. Dimitris Papanicolaou, Mahwah, NJ
Jennifer Spotila, King of Prussia, Penn.

The two directors whose service to the Board will conclude at year-end are:

Diane Bean, Bethesda, Mary. (2004-2005)
John Trussler, Grants Pass, Ore. (1997-1999 and 2002-2005)

The Association’s Board of Directors meets monthly, usually by telephone, to exchange information, hear staff reports and set policy for the Association. To learn more about the Association’s directors, visit http://www.cfids.org/about/board-of-directors.asp

Discounted Tickets Still Available!
Tickets are still available for the Association’s second “kNOw MORE” CFS Education and Empowerment Seminar in Charlotte, NC on Sunday, November 13, 2005. Featured speakers are Dr. Nancy Klimas and Dr. Peter Rowe. Tickets for this half-day seminar are just $15 if purchased before November 7, 2005 and $20 if purchased after the deadline and at the door. To register, please call 704-364-0466 or visit http://www.cfids.org/ecommerce/products.asp?setCategory=6. Seating is limited so pre-registration is strongly encouraged.


Ask the CEO
Readers share their concerns, questions and comments with K. Kimberly McCleary, President & C.E.O. of the CFIDS Association of America. Visit http://www.cfids.org/cfidslink/2005/ask-ceo.asp.


Bulletin Board Notices
Visit http://www.cfids.org/community/bulletin-board.asp for up-to-date news and happenings within the CFIDS community.