Association News
Activities and opportunities from The CFIDS Association of America

Annual report available
The CFIDS Association is deeply grateful to those whose generosity and spirit have sustained and accelerated our vital efforts since our founding in 1987. Within the pages of the 2001 Annual Report you’ll find a retrospective on the Association’s journey and overviews of last year’s achievements in CFIDS education, public policy and research. As you review the report, we hope you will share our satisfaction about what we’ve accomplished together as well as our strong commitment to meeting the challenges that lie ahead. For a copy call 704-365-2343 or read it online at http://www.cfids.org/about/annual-reports.asp.

Band’s “Stamina” tour to benefit CFIDS
The rock band Jordan ’s Wake plans to play a series of 60 concerts in 30 days this fall to raise money for CFIDS awareness and research. The band’s “Stamina” tour is slated to begin on Sept. 25 with a pair of shows in Nashville , Tenn. , then will visit college campuses around the country.

The band was still booking its concerts at press time. For tour dates and more information, check the band’s Web site at  http://www.theease.com/ .

Band members decided to create the Stamina tour in honor of their producer, a person with CFIDS (PWC).

CFIDS grassroots campaign debut
The Association has been seeking new supporters for CFIDS on Capitol Hill and recently began its Congressional Champion Outreach Campaign. The campaign encourages PWCs and their families and friends to undertake grassroots CFIDS awareness efforts.

“This is an opportunity for PWCs to help shape public opinion and public policy on CFIDS,” says Association President and CEO Kim Kenney. The Association has designed an information kit that will assist PWCs in reaching out to their local media and Congressional representatives.

To learn more about the campaign, please contact Leah Moseley at 704-364-0016 or lmoseley@cfids.org.

If you would like to subscribe to the CFIDS Activist (C-ACT) and CFIDS Public Relations (CPR) Team, a free online advocacy/media announcement list, send an e-mail message to c-actmembership@cfids.org with “SUBSCRIBE” in the subject line and your name, mailing address, e-mail address and telephone number in the body of the message.

Youth Web site sports new look
The youth portion of the Association’s Web site has a new look. Visit http://www.cfids.org/youth.asp to access vital information about how CFIDS affects children and families. The site features stories about health issues, coping skills, educational rights and more.

Kenney testifies on Capitol Hill
CFIDS Association President & CEO Kim Kenney responds to a question from Rep. Ralph Regula (R-Ohio) during a May meeting of the House Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies. Kenney appeared before the subcommittee to argue for more federal funding for CFIDS research in Fiscal Year 2003, which begins Oct. 1, 2002.

A transcript of Kenney’s testimony is available on the Association’s Web site at http://www.cfids.org/advocacy/congress-testimony.asp.