In this issue
is mailed quarterly to members
of The CFIDS Association of America. For information on how to join the
Support Network News
CSN Champions Announced
By Kris Hopkins
CFIDS, Change and
By Gail Caissy,
Readers make the Chronicle
Fourteen years ago this month,
the first issue of The CFIDS Chronicle rolled off the presses - or,
more accurately, popped out of the Xerox machine.
A copy of that
newsletter sits on my
desk as I write this note. The Chronicle has come a long way since its
humble, 10-page debut in 1988. Yet a line on that first front page rings as true
today as it did back then:
"The quality of
this newsletter will
be a reflection of the creativity of the people who contribute to
publication. The CFIDS Association of America publishes it, and I edit it, but
you make it happen. Without your letters, articles, tips, photographs and ideas,
we can't fill the pages with information you want to read.
This is my third
Chronicle editor. I have a broad background in print journalism, and
have written or co-written more than a dozen books on health care topics ranging
from high blood pressure to allergies. Yet in all my professional experience,
I've never encountered a patient community as diverse and determined as people
with CFIDS (PWCs).
I've met a number
of you in the past
months, at conferences and Lobby Day, over the phone and via e-mail. Many PWCs
have shared ideas and wishes for the Chronicle, and I plan to incorporate them
into future issues.
Let me urge everyone
else to share
your thoughts and experiences as well. If you have a suggestion for a story,
send me an e-mail. If you have a coping tip or other advice, give me a call. If
you have the time and energy to write something, by all means do so. And if you
have comments or criticisms about the way we're doing things, don't hold back.
We won't know unless you tell us.
I've heard many
times that the
Chronicle is the flagship of the Association, its most visible and
effective tool for spreading the word about CFIDS. I'm honored to take my turn
at the helm. But I need you, the people we write for, to tell me where you want
to go and what you want to see in your publication as we move into year 15.
Thanks for the