Association Chairman hands reins to Sterling
Driven
by sheer determination
to find a cure for the illness that turned his life upside down, Marc M. Iverson founded The CFIDS Association
of America in 1987. However, after 13 years as Chairman of the Board, Marc has stepped down due to his
declining health.
Marc's contributions to the CFIDS community are far too many to list, but we
are grateful that he will continue to share his vision and guidance with the Association and persons with
CFIDS through his role as Founder.
We are delighted to introduce Jonathan B. Sterling, a former
principal in the New York City school system, as our new Chairman. Jon is a PWC and past President of
the New Jersey CFS Association (NJCFSA). He joined the Association's Board in 2000 as Treasurer and is
currently the nonfederal cochair of the Department of Health and Human Services' Chronic Fatigue Syndrome
Coordinating Committee.
Four members of the Board have retired. Thanks to Priscilla deLeon, Karen
Lang, John Trussler, and Frank Wrenn for their many valuable contributions and years of service to the
Association.
The Association also welcomes the following new Directors: Richard Baldwin, Dennis
Irwin; Beth Levine; and Adrianne Ryan. More information on these new directors will follow in the next
issue.
Symposium shapes research efforts
The
Association held the first
in a series of events intended to reinvigorate CFIDS research in December. A symposium on orthostatic
intolerance (OI) in CFIDS was held to establish a consensus on the association between OI and CFIDS and
identify opportunities for future research. [Editor's
Note: For
more information, see the Winter
2001 CFS Research Review.]
To broaden scientific knowledge about and interest in CFIDS
and the important questions facing researchers, the Association will be offering research grants to scientists
conducting promising studies in the priority areas identified by the panel.
Future symposia will
address neuroendocrinology, immunology, and diagnostic methods in CFIDS.
Grant acknowledged
The Jan. 3 Journal
of the American Medical Association
paper on Florinef treatment in CFIDS acknowledged
the Association for a bridge grant to Johns Hopkins in support of the project. The bridge funding
totaled $18,216 in 1996 and enabled the study to begin after approval but prior to the start of the National
Institutes of Health funding for the project. For more information on the study, see the Research
News column in this issue.
Ten-year anniversary
Feb. 1 marked
President & CEO K. Kimberly
Kenney's 10-year service anniversary with the Association. Kim's tremendous contributions and dedication
to expanding the Association's programs have impacted the entire CFIDS community. Under her leadership,
the Association has become the largest national organization dedicated to conquering CFIDS.
The
Association wishes to thank Kim for her unmatched commitment and devotion to the CFIDS community and the
Association.
WEB MAKEOVER
The CFIDS
Association is preparing to launch
its completely updated and redesigned Web site. The new site will include interactive features and
specific areas that address the needs of special audiences, including PWCs, caregivers, the media, and
health care practitioners.
The revised Web site should be operational this spring, so visit us
often at www.cfids.org.