Advocacy Updates

Advocacy Alert: 4/22/2009

Update on CDC Meeting to be held April 27

In response to the CFIDS Association and other advocates' requests, the CDC has made a number of accommodations to expand access to the public meeting it will hold on Monday, April 27.

• A call-in option has been added. "Partipcipants will be able to hear the full proceedings and time will be devoted to receiving comments from telephone callers." To register to attend by phone, send an email with your name, affiliation (if any), address, phone, fax and email address to CFSResearchPlan@cdc.gov.
• Written input to the plan will be accepted through May 1(extended from April 22). Send comments to CFSResearchPlan@cdc.gov.
• CDC is considering a means to solicit input on the plan draft after it is circulated at the May 27-28 meeting of the CFS Advisory Committee in Washington, D.C.

View the updated meeting announcement at CDC's web site: http://cdc.gov/cfs/meetings/2009_04.htm.

We will continue to keep you posted about these another opportunities to influence policy decisions that affect people with CFS.