Advocacy Updates

Advocacy Alert: 4/15/2009

CDC Invites Stakeholder Comments

Express your views about CDC's CFS Research
Comments solicited before April 22
TAKE ACTION

The U.S. Centers for Disease Control and Prevention (CDC) will host a public meeting to gather input on its chronic fatigue syndrome (CFS) research program as it develops a 5-year plan. The draft plan will not be made publicly available before this meeting, but CDC is soliciting input on the following 5 categories of research topics:

• Studies of Defined Populations
• Provider-based Patient Registries
• In-hospital Clinical Studies
• Laboratory Studies
• Provider and Public Educational Intervention Research

The complete meeting notice can be viewed at http://frwebgate4.access.gpo.gov/cgi-bin/PDFgate.cgi?WAISdocID=821665289342+0+2+0&WAISaction=retrieve. Learn more about the CDC's CFS research program at its website, http://cdc.gov/cfs/cfsresearch.htm. No one from the program leadership was present at the 9th international research CFS conference held last month in Reno. Read more about CDC's program based on presentations and testimony given at the most recent federal CFS Advisory Committee meeting: http://www.cfids.org/cfidslink/2008/110704.asp.

Use this simple form to send your comments to CDC. We have intentionally left the main comment area blank so that responses are individualized.