We want
YOU to join us in Washington, D.C. on May 8-9 for the CFIDS
Association of America's 14th Lobby Day on Capitol Hill. This
year's event is extra-special because we'll be introducing members of Congress
and their staff to the CFS awareness campaign, in addition to talking with lawmakers
about funding for research and treatment centers, disability and education
issues.
May 8: Training
Session
On the afternoon of Monday, May 8, a mandatory training
session will prepare all lobby day advocates for meetings on the Hill. Tom Sheridan, the Association's Washington, D.C., government
relations advisor since 1992, will lead the session. He'll provide background on
current federal priorities and up-to-the-minute issues that may affect
discussions with members of Congress and actions they commit to take. Tom's
associate, Michelle Nawar, will brief participants on the legislation we'll be
trying to impact and how Capitol Hill staffers might use the information
advocates present during these meetings. Kim McCleary, the Association's president & CEO, will
describe how advocacy drives other initiatives important to the CFIDS community
and will review talking points and congressional requests. You'll also hear from
veteran lobby day participants about what to expect and will practice new skills
with the people you'll be grouped with for appointments the next day.
First-time advocates will
be matched with veteran lobby day participants or Association staff for their
meetings on the Hill. By the end of the session all advocates will feel
confident with their messages, comfortable with Capitol Hill and secure in their
right to be heard.
May 9: Lobby
Day
When registering, advocates choose whether they prefer morning
or/and afternoon appointments and whether they wish to do a heavy schedule or
one that's light. The Sheridan Group and the Association schedule all Hill
meetings, targeting members of Congress who serve on committees that determine
medical research funding and set health policy. We also reach out to newer
members of Congress and those who represent lobby day advocates. In recent years
advocates have met with a total of 70-85 key legislators on this single day – a
major achievement for the CFIDS community and personally rewarding to the
individuals who take part. We celebrate the victories large and small with a
reception that evening, also a chance for advocates to share experiences and
form or renew friendships with others committed to the cause.
Please consider joining us
for this year's event. We recognize that for many people affected by
CFIDS, limitations imposed by health, strained finances and other
responsibilities make it impossible to consider traveling to Washington,
D.C., so we are extremely grateful for the efforts and sacrifice that
participants make to take part in this experience. As the date approaches, we'll
have a "virtual lobby day" through CFIDS Link and our
Grassroots Action Center http://capwiz.com/cfids/home, enabling
those who can't be with us in Washington to augment the impact of what advocates
are able to accomplish in person on Capitol Hill.
For further details or to register, visit http://www.cfids.org/advocacy/Lobby_Day_2006_Info.pdf our lobby
day packet, send a message to LobbyDay@cfids.org or call the Association's
Resource Line at 704-364-2343. The deadline for registration is Monday, April
17.