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Profiles
Most people will not become interested or active in efforts surrounding a medical condition
until they
can imagine what it would be like to have it. Profiles about life with chronic fatigue and immune dysfunction
syndrome (CFIDS) are important because they give those unfamiliar with the illness an accurate picture
of the toll it takes on individual lives.
Sharing personal stories also gives patients a voice. Award-winning author and person
with CFIDS (PWC)
Floyd Skloot says, "Some of us have been silent because of the hopelessness of overcoming both symptoms
and perceptions… We need to share our experience, to say what it is like to be a PWC. The act of communication
serves both speaker and hearer."
Many PWCs, including several well-known celebrities with
CFIDS, have
spoken out about their experiences in order to advance knowledge and understanding of the illness.
The CFIDS Association of America gives PWCs from all
walks of life a chance to share stories and coping tips inThe CFIDS Chronicle, a quarterly magazine
for the
patient community. The Association has also created a new publication,Snapshots
of CFIDS, which provides compelling
profiles of CFIDS patients and the impact the illness has had on their careers,
education, families, and hopes for the future.
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