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Research: Clinical Trials Biomedical research holds the greatest hope for unraveling the mysteries of chronic fatigue syndrome (CFS). Many persons with CFS (PWCs) have inquired about opportunities to participate in research studies. The CFIDS Association of America does not recommend or endorse participation in any specific medical research study and assumes no responsibility for the safe or ethical conduct of the studies listed below. The Association provides this information as a service to persons with CFIDS and related disorders who are interested in participating in medical research, and for researchers who are seeking subjects for their studies. Patients: Please also see databases and other listings of clinical trials and resources for those considering enrolling in a study. Researchers: to inquire about listing your study on this page, please write to research@cfids.org. Please let us know when your studies are no longer recruiting subjects so we can keep this page current. Studies currently recruiting patients with CFS or related conditions
The CFIDS Association of America regularly issues funding announcements as part of its research grants program. Its most recent Request for Applications was issued on March 3, 2008. For more information about this funding opportunity, please visit http://www.cfids.org/profresources/2008rfa.asp. Huntsman Cancer Institute Individuals who have had severe, unexplained fatigue for at least six months and who have no serious abnormalities on medical tests are wanted for a study of chronic fatigue. Patients who qualify for the study will be asked to complete three questionnaires over a six month period. Participating in the study will not alter the treatment that your physician gives you. The purpose of the study is to evaluate whether patients treated by certain types of physicians improve faster than patients treated by other types of physicians. Patients do not need to live in the Salt Lake City area. Questionnaires will be mailed to study participants or can be completed online. If you are interested in participating, please contact the study coordinator, Kathleen O’Connor, Huntsman Cancer Institute in Salt Lake City, UT, by phone (801) 587-4741 or email kathleen.oconnor@hci.utah.edu for more information. Center for Pediatric Hypotension Researchers at the Center for Pediatric Hypotension at New York Medical College in Valhalla NY have received funding from the National Institutes of Health (NIH) to study whether circulatory problems explain the symptoms and signs of the chronic fatigue syndrome in teenagers. Principal Investigator is Julian M. Stewart MD, PhD, and Professor of Pediatrics and of Physiology at New York Medical College. The overall objective of the study is to determine the biochemical mechanisms of CFS/POTS (postural tachycardia syndrome) as they relate to changes in nitric oxide and angiotensin, and to explore the possibility of subclinical, microvascular abnormalities in those CFS patients without POTS. If POTS is present they will also test medications used for treating POTS which may help teenagers with CFS. They are seeking patients aged 15-29 years old patients with chronic fatigue syndrome (CFS) with or without any overt form of cardiovascular or circulatory disease. Details on this study can be found at www.syncope.org. For further information please contact the Study Coordinator: Do you or someone you know suffer from Fibromyalgia?
For further information or to see if you may qualify, please contact a research site in your area: Hunter-Hopkins Center The Center of Community Research at DePaul University The Center of Community Research at DePaul University is working to investigate the symptoms of CFS in children and adolescents in order recognize CFS in a younger population and WE NEED YOUR HELP!
Please help us collect data to learn more about pediatric CFS by completing the DPHQ with your child!Contact: Elizabeth Shelleby eshelleby@depaul.edu or by phone at 773-325-1897 New York Medical College Seeks Adolescents with CFS Sponsored by: National Institutes of Health CFS patients ages 13-19 are being recruited for a NIH-funded study investigating the hypothesis of circulatory dysfunction in CFS. Recent investigations indicate that most teenagers with CFS have a form of chronic orthostatic intolerance (the inability to remain upright without symptoms) called the postural tachycardia syndrome (POTS), which impairs blood flow and heart rate, and sometimes causes a fall in blood pressure. These patients have symptoms of chronic orthostatic intolerance including dizziness, fatigue, nausea, headache, pallor and neurocognitive loss (difficulty thinking), which overlap with the case definition of CFS. Our study will determine how often POTS occurs, the mechanism(s) of POTS in individual patients and the effectiveness of a medication used for treating POTS in adolescents with CFS. For more information, see the study website. Other listings for Clinical Trials
Resources For Those Considering Enrolling in a Study
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